The Real Possibilities – Reaching Beyond a Diagnosis

I’d like to preface this with one thing.  I don’t usually post to Sunny about things in my life that are just developing or things that I would consider to be “in limbo”.  This is me, Lulu, reaching out into the community in search of some informed opinions and suggestions.  I want to hear from you to learn about your personal experiences and gain from the reader’s pool of knowledge.  Not every answer is clear cut, and most of the best answers can’t be found in a book somewhere.

The New Doc on the Block

I went into my psychiatrist’s office for my regular med check last Friday.  Except, there was nothing about this that was regular.  My psychiatrist Dr. K. wasn’t in, and another doctor I was meeting for the first time was filling in.  I figured it would be more of the same, you know, “How’s it going?”  “Fine, except a couple of things.”  “Okay, well go off into the world, be good, and take your medication.”

I was dead wrong.

He asked me a few typical questions, like “What’s your diagnosis?”  and “What medications have you been on?”  and things of that sort.  He asked me how I’ve been feeling recently, and I answered honestly.  Mostly, I’m alright.  My moods are pretty stable, and I’m in a pretty good place most days.  I’m still pretty irritable and the anxiety I’m experiencing is just unmanageable anymore.  But, those are the constants.

I’m not fighting depression or mania at the moment, or living inside the confusing anguishing hell that is a mixed episode.  I’m alright.  Just alright.  Probably the best I could expect to be doing being someone with this condition.

This part shocked the hell out of me.

The doctor goes into a long explanation of why I’m still experiencing symptoms, being that I’m apparently not on medications that actually treat the disorder.  He tells me that Lamictal is not a mood stabilizer. Since I’m not on a mood stabilizer or and an antipsychotic, and since I have a lot of options, I should be on both.  In his medical opinion, I should not be on Wellbutrin or even really any antidepressant at all.  And Xanax and Halcion are not supposed to be for long term use to manage anxiety.

I fought him on the antipsychotic, explaining that those types of medications and I don’t get along well.  He insisted it was because I’ve never been on an actual mood stabilizer.  He kindly smiles and promised that as soon as my meds were fixed, then my bipolar would be fixed, and I’d be right on track.

He advised me to take a look on the internet at my treatment option throughout the next month, and then discuss with Dr. K. when I came back.

It was like getting slapped by someone in a moving vehicle.

As quickly as I went in, I was back out again.  I was disoriented and confused.  For a minute, I actually considered his words might be the truth to the whole thing.  Then I remembered what being on antipsychotics was like.  That created a whole host of problems that were unlike any I had ever experienced before.  And I don’t care to EVER go there again.

So, Xan and I got in the car, and I laid the whole thing out for him.  He was completely on my side.  He said, “I don’t see why they are trying to fix something that isn’t broken?   Why are they trying to dope you up like this?  What did you tell him?”

I replied, “Nothing out of the ordinary!  I told him that I’m having difficulty keeping a job, but I have no idea what that’s all about.  I’m struggling socially and have been, well, pretty much my entire life.  And that irritability, insomnia, and anxiety have been a constant for me.  I mean, for my ENTIRE life, before all the mood stuff started.”

And we both agreed.  Whatever throws down, that cocktail is not happening.

To Be Bipolar, Or Maybe Not Bipolar?

I’ve been thinking about this for quite awhile now.  My moods have been pretty stable for about a year now.  I mean, that is cause for celebration here.  I’ve had some minor snags here and there, but all in all, I’ve been pretty level.  The episodes I do have are not nearly as deep as they once were, even if the duration might be seemingly longer.  So, why am I still seeing significant dysfunction in certain respects?

Is it possible that I might not even have Bipolar Disorder in the first place?  Could it be something else?  Borderline Personality Disorder and Bipolar share some diagnostic traits.  Could there have been a mixup?

Or, perhaps, the mood episodes were actually solved, as I suspected, and we’re now uncovering something underneath the mood shifts?  I have long suspected that the anxiety that I’m reporting hasn’t had anything to do with my mood shifts, although I did describe them as having the ability to spark depression or mania, depending on the context.

Xan and I sat down later, and I said, “You know, if Dr. K. is going to cause trouble and shift medications around, I’m going to request that we do a complete reevaluation.  I’m talking about starting from scratch, covering it all from A – Z.”

He answered, “I think that’s a good plan.”

My Homework Assignment

So, I’m doing my homework assignment right now.  I’m doing my research on the internet.

BUT!

I’m going beyond all of the articles, medical websites, and online assessments.  Sure, I’ll have those tucked under my belt, but I’m not a person who half-asses anything.

I’m taking it to the people.

Tell me about your experiences.  I’m open to all suggestions, ideas, theories, and everything and anything all open minds would like to add.

Thanks ahead of time readers.  I’m counting on you!

Advertisements

Treasure

Today, my son taught me an important lesson on value and how we place it.

My son is a really special little guy. He has Pervasive Development Disorder – Not Otherwise Specified on the Autism Spectrum.  So, a lot of little things that would be be considered typical in other children are really significant for him.  I can’t tell you how many times I’ve heard a parent tell their four year old to shut up because the chatter became overbearingly annoying.  I always feel that twinge of sadness, fearing that my son may never speak enough for me to become aggravated at all.  Those moments are significant for me, too.

But, then there are those moments that are significant in an enlightening way.

I was sitting at the dining room table this morning with my wallet and what we call “The petty cash box”.  I was mindlessly dumping change into it when my son approached me.  When he speaks, I listen with all of my might to make out what he is saying.  It might be the only thing I ever put my full attention into.  He said, “Mommy, money!”  I was thrilled that he took an interest in what I was doing, and I allowed him to put the money in the box while supervised.

He happily put the money in, and presented me with a quarter saying, “Mommy, want quarter?”  I was delighted that he could identify it.  Suddenly, he grabbed the box and started to walk away.  I was about to chase him down just when he put it on the end table. He turned to me excitedly and shouted, “Look, Mommy! Treasure!”

He started to prattle on about being a pirate when my heart just melted. It was a brilliant observation. The little box kind of resembled a treasure chest, brimming with different colored coins. And that’s when it hit me. It wasn’t just about the likeness. It was about the whole interaction. And the whole thing had taken on an entirely different value.

I started to think about the things that I value. What do I cherish?

The realization hit me. Lately, I’ve been dwelling on the things that I want, but don’t have. My focus had been shifted onto the seemingly hopeless pursuit of these things. And I realized that those things are intangible idealizations that may never even have the possibility of becoming a reality. Those things had gained all of the value over the things I truly cherished and clouded my mind.

What do I value then?

Little, daily victories for my son. A few engaged words here and snippets of hopeful conversation there. His new discoveries and interests. And each beautiful little smile and giggle. All of those shining moments that give me hope for his development through Autism Spectrum Disorder.

But even more for him, I value him. Him, as he is. My 4 foot tall, 55lb, brown haired, green eyed little Beast.

I value my husband’s caresses. This morning, he unexpectedly turned over and actually spooned me. It was more than welcome. It was soothing, comforting, and all spontaneous. It was one of those rare, intuitive moments he had. I cherish those.

But, I value even more than those fleeting moments. It is bigger than that. I see what I have missed all along. Every action is an intuitive, invested action. Whether I know it or not, he’s taking care of my needs that I don’t even think about anymore. I was overlooking what was right there in front of me because I was too involved with what I considered to be neglected needs.

Finally, my eyes started to open up.

When I really thought about it, I found value in myself today. I have been so fixated on what I am not, and the things I thought I had lost, I lost sight of who I am and all of the things I have gained. I am a mother. I am a wife. I have been those things for longer than I have been anything else. I am those things above all else. And I don’t know how I came to value anything else.

I lack certain qualities, but that does not make me devoid of myself. There is plenty of me. I am not stable, but I am spirited. I am not entirely well right now, but I cannot expect to be well all of the time. I have Bipolar Disorder. I am not Bipolar. I am more than my illness and more than my symptoms.

Today, I connected with my husband without trying or wanting. I connected with a son I thought I was losing to Autism Spectrum Disorder. But more so, he connected with me. He reached out and connected me with the world again. And that was what made all of the difference.

A new dawn, a new day.

Leep-Into-Cin – Part III

Part three and recent parts of my fight with cervical cancer

As the Pendulum Swings

Warning: The following content can be considered graphical in nature.  It may contain material that may not be appropriate for certain audiences.  Children under the age of 18, those of the male gender, and others faint of heart may want to take extra care while viewing this.  Use your own discretion.

Bringing in the Big Guns

After the experience where I was left stranded on an operating table, I had grown animosity toward that doctor that performed my surgery.  I refused to see her, and I refused to go through any more procedures.  It didn’t matter.  I had lost my insurance again and there was nothing I could possibly do.  The only other option was to return to the clinic so that they could slowly kill me with their negligence.

I did break down and go to the clinic, but only for a required Pap to receive birth control.  I…

View original post 1,311 more words

Leep-Into-Cin II – Part II

Part two of my journey with HPV and Cancer

As the Pendulum Swings

Warning: The following content can be considered graphical in nature.  It may contain material that may not be appropriate for certain audiences.  Children under the age of 18, those of the male gender, and others faint of heart may want to take extra care while viewing this.  Use your own discretion.

July 19, 2007

C.S. and I walked through the neighborhood in the early morning hours.  The air was thick and heavy like wet cotton, but a chilled wind passed every few moments, carrying with it the scent of midsummer rain.  Our discourse was just as thick, but much more warm.  It was like other evenings, but with an electric charge of an impending thunderstorm in the air.  We walked the desolate backstreets with a course for a local convenience store.  Everything was quiet, with the exception of our conversation and the light patter of rain beginning to fall.

Mid-sentence…

View original post 1,956 more words

Leep-Into-Cin II – Part I

Finding out about HPV and cervical cancer

As the Pendulum Swings

Warning: The following content can be considered graphical in nature.  It may contain material that may not be appropriate for certain audiences.  Children under the age of 18, those of the male gender, and others faint of heart may want to take extra care while viewing this.  Use your own discretion.

One Bad Apple . . .
Twelve years ago, almost to the day, the relationship with my first love started.  We had gone circles for over six months.  He eyed me, and I fancied him.  We spoke almost daily and we had become great friends.  There were many late night conversations, spilling out our hopes, dreams, fears…  But, he was forbidden fruit, the tastiest of them all.  He was my best friend’s boyfriend.  After over a month of clandestine meetings, secret phone conversations, secrets, and lies, I came clean.  And within six months after that, we were no longer…

View original post 1,711 more words

Invitations to Narnia : 30 Days of Truth

Day 05 : Something you hope to do in your life.

As it stands, one can find me within the wardrobe amongst the coats, between the real world and my Narnia. This is not the Narnia as others know it. It is the absolutely surreal, ever shifting landscape, containing both horrific monsters and beautiful, majestic creatures. All of that world is tucked away, within a wardrobe, in an innocuous cranny of my home. Many unsuspecting people could stroll up to it, jam their coat in, and never give this unassuming wardrobe another thought.

Lunaria

But, this world is not meant to exist tucked away.  This world lives inside of me, wrapped up in an old world map, tied with a satin ribbon.  It waits to unfurl for all of the world to see.

Snapshots of this map are contained within every word, in each piece that I carefully create.  Some have been privy to view them, scanning the terrain, gazing upon the horrors and magesty.  Others have been lucky enough to set foot on the Terra Amici, The Land of Friends, specifically set aside to welcome guests who have braved the Sea of Aliquim.  And others, those closest to me, have journeyed through the deepest, darkest places of Lunaria.

I dream of the day that I allow Lunaria to emerge from the wardrobe.  This is the day that the earth will quake around me to birth Lunaria from within.  I will invite others to explore at will, without the requirement of the confines to Terra Amici.  To brave the fiery mountains, volcanoes spewing molten rock,shifting and shaping the landscape daily.  The mountains grow higher, only to be whittled away by the erosion.  Bask in Bad Wolf Bay.  Peer deeply into Mare Demersi, but still fear to tread too closely.  Lose themselves in Vac Saltus, and navigate the sullen, sunken lands of Val Mergullado.

All of this, one day will be accessible to all.  Lunaria will rise.  I can openly narrate the tales and history of Lunaria without fear of persecution and ostracism.  I hope to accomplish my quest of bringing this all out of the wardrobe.  I want others to see what my world, one world of a woman with Bipolar Disorder looks like.  It possibly connects to other places, to weave a global patchwork of personal worlds, connecting us all, to encompass every single person who has been hiding their own Narnia.

I hope to have a voice that can bring this all to the world.  And I hope to build the strength to do it.