The Real Possibilities – Reaching Beyond a Diagnosis

I’d like to preface this with one thing.  I don’t usually post to Sunny about things in my life that are just developing or things that I would consider to be “in limbo”.  This is me, Lulu, reaching out into the community in search of some informed opinions and suggestions.  I want to hear from you to learn about your personal experiences and gain from the reader’s pool of knowledge.  Not every answer is clear cut, and most of the best answers can’t be found in a book somewhere.

The New Doc on the Block

I went into my psychiatrist’s office for my regular med check last Friday.  Except, there was nothing about this that was regular.  My psychiatrist Dr. K. wasn’t in, and another doctor I was meeting for the first time was filling in.  I figured it would be more of the same, you know, “How’s it going?”  “Fine, except a couple of things.”  “Okay, well go off into the world, be good, and take your medication.”

I was dead wrong.

He asked me a few typical questions, like “What’s your diagnosis?”  and “What medications have you been on?”  and things of that sort.  He asked me how I’ve been feeling recently, and I answered honestly.  Mostly, I’m alright.  My moods are pretty stable, and I’m in a pretty good place most days.  I’m still pretty irritable and the anxiety I’m experiencing is just unmanageable anymore.  But, those are the constants.

I’m not fighting depression or mania at the moment, or living inside the confusing anguishing hell that is a mixed episode.  I’m alright.  Just alright.  Probably the best I could expect to be doing being someone with this condition.

This part shocked the hell out of me.

The doctor goes into a long explanation of why I’m still experiencing symptoms, being that I’m apparently not on medications that actually treat the disorder.  He tells me that Lamictal is not a mood stabilizer. Since I’m not on a mood stabilizer or and an antipsychotic, and since I have a lot of options, I should be on both.  In his medical opinion, I should not be on Wellbutrin or even really any antidepressant at all.  And Xanax and Halcion are not supposed to be for long term use to manage anxiety.

I fought him on the antipsychotic, explaining that those types of medications and I don’t get along well.  He insisted it was because I’ve never been on an actual mood stabilizer.  He kindly smiles and promised that as soon as my meds were fixed, then my bipolar would be fixed, and I’d be right on track.

He advised me to take a look on the internet at my treatment option throughout the next month, and then discuss with Dr. K. when I came back.

It was like getting slapped by someone in a moving vehicle.

As quickly as I went in, I was back out again.  I was disoriented and confused.  For a minute, I actually considered his words might be the truth to the whole thing.  Then I remembered what being on antipsychotics was like.  That created a whole host of problems that were unlike any I had ever experienced before.  And I don’t care to EVER go there again.

So, Xan and I got in the car, and I laid the whole thing out for him.  He was completely on my side.  He said, “I don’t see why they are trying to fix something that isn’t broken?   Why are they trying to dope you up like this?  What did you tell him?”

I replied, “Nothing out of the ordinary!  I told him that I’m having difficulty keeping a job, but I have no idea what that’s all about.  I’m struggling socially and have been, well, pretty much my entire life.  And that irritability, insomnia, and anxiety have been a constant for me.  I mean, for my ENTIRE life, before all the mood stuff started.”

And we both agreed.  Whatever throws down, that cocktail is not happening.

To Be Bipolar, Or Maybe Not Bipolar?

I’ve been thinking about this for quite awhile now.  My moods have been pretty stable for about a year now.  I mean, that is cause for celebration here.  I’ve had some minor snags here and there, but all in all, I’ve been pretty level.  The episodes I do have are not nearly as deep as they once were, even if the duration might be seemingly longer.  So, why am I still seeing significant dysfunction in certain respects?

Is it possible that I might not even have Bipolar Disorder in the first place?  Could it be something else?  Borderline Personality Disorder and Bipolar share some diagnostic traits.  Could there have been a mixup?

Or, perhaps, the mood episodes were actually solved, as I suspected, and we’re now uncovering something underneath the mood shifts?  I have long suspected that the anxiety that I’m reporting hasn’t had anything to do with my mood shifts, although I did describe them as having the ability to spark depression or mania, depending on the context.

Xan and I sat down later, and I said, “You know, if Dr. K. is going to cause trouble and shift medications around, I’m going to request that we do a complete reevaluation.  I’m talking about starting from scratch, covering it all from A – Z.”

He answered, “I think that’s a good plan.”

My Homework Assignment

So, I’m doing my homework assignment right now.  I’m doing my research on the internet.

BUT!

I’m going beyond all of the articles, medical websites, and online assessments.  Sure, I’ll have those tucked under my belt, but I’m not a person who half-asses anything.

I’m taking it to the people.

Tell me about your experiences.  I’m open to all suggestions, ideas, theories, and everything and anything all open minds would like to add.

Thanks ahead of time readers.  I’m counting on you!

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Vitamin L : Medication Adventures

Lamictal.  The one drug that I can say that we’ve all been on at one point or another in our adventures with medication.

Pardon me, my aphasia is showing with a little dash of emotional flattening.

I’m having difficultly remembering how to spell things.  You wouldn’t know it, because there is a such thing as spell check just for this purpose (but not solely).  My emotions are at such a level that I don’t actually feel.  It’s closer to a favorite pair of jeans where the dye has just completely washed out.  The jeans still look good, but they are faded and muted.  That’s me.  Faded and muted.

I can’t write intelligently like I did before.  Everything just comes pouring out like word vomit, because I can’t hang on to a thought for longer than a moment.  It’s a miracle that I can put anything coherent together.

The landscape of my technicolor world washed away into an old movie reel.  It’s so surreal.  Once, I was the flowing turquoise waters of the seas, ever changing, always in motion.  Now, I am the cracked earth, immobile and silent.  And ever so slowly, I am drying up and eroding, existing without life rooted in me.  Only the empty air whistles in my mind, catching a faint tune here and there, only to carry it away.

Moments come in flashes.  I am engrossed and deeply engaged for just a few seconds before I am distracted by something nonsensical.

Stop.  Sip of coffee.  What was I doing again?  I reread my last passage, and I am stumped, because it seems futile to even continue.  What is the point I am trying to convey with such vague and poorly worded imagery?

That was my world for the last month, prior to the last couple of weeks.  That is my life today, a translucent figure shrouded by shadows, discontent with such a shackled self.

That was not my life over the past couple of days.  That is how I narrowed down what medicine was doing this to me.  I was starting to run out of Lamictal, my Vitamin L as it’s commonly called in the mental health community (not to be confused with the Vitamin L of Lithium).  I lowered my dose from 300 mg to 200 mg in order to make it through successfully.

Except, there was no success to be had.  I went straight back into the same mixed episode I’ve been a slave to for more than nine months.  It was almost as bad as before, sans the psychosis.  I referred to it as Energetically Sad.  The story of my life.  I went into several crying fits a day, panicked and shouting the same phrase again and again,

“I can’t do this!!!  I can’t do this!!!”

Not again.  Not again.  Not again.

I can’t do this again.

Ultimately, I grabbed my precious medicine and dosed. The distress was immeasurable. I needed relief from that hell, the one I had endured for far too long.

But, I realized I’m not experiencing relief. I’m experiencing escape. My mind goes into a state of partial shutdown, leaving me no real clarity in any aspect. My consciousness is jagged, disjointed, and blurry, at best.

I experience slow motion waves of hollow, but shallow depression. Futility is found at every turn. The shadows seem deeper and more defined, like menacing sillouttes in the distance. I can’t shake them, but they can’t seem to touch me. They nip at my heels, and send ripples of darkness through me, infecting every molecule. And in a few moments, it passes, the poison having been purged.

At first, I thought it was just me. It felt like a new state altogether, like anxiety masked by a tight cloth, rustling, deperately seeking an outlet. It had the face of depression, leaving me dispondent and uninspired. But no true symptoms existed. Not in the desperate, deep dark places I’ve been. I stood in a parellel existence unlike anything I’ve ever known.

And then I thought, “Is this what it’s like to be better?” Dullness and mild discontent.

It’s not.

It’s the medication.

So, that leaves me with two very undesirable states. Perpetual distress or muted depression and anxiety. One zaps my everything, making me too medicated to function. The other disrupts my life with meltdowns, only making me partially functional.

One little pill is what makes the world of difference. My vitamin L.

Abilify and I – More Adventures in Antipsychotics

It’s Wednesday. I’m not quite a week in yet, but I do have a report about some obvious side effects.

Headache. Like that’s new for me.

But, there really are some brand new ones:

Stomach upset, Nausea:

The first day, I had stomach upset so badly that I was actually having stomach pain. The stomach upset created nausea, and almost had me hugging the toilet several times. It’s like morning sickness.

So, I started treating it like morning sickness. Crackers and flat water, every morning.

Increased thirst:

I instantly dehydrated the very same night, within hours.

After a few days, I still have to wake up and pound 16 oz. of water. Then, I have my coffee and pound another 16 oz. of water. Rinse and repeat until I’ve consumed about 96 oz. of water in a day.

Interestingly enough, I figured out the increased hunger phenomenon. It’s not actually hunger, though it is translated as such. Once I dehydrate badly enough, my body starts sending hunger signals. It’s common for people to mix up hunger and thirst.

I’m not actually hungry. And even when I am, I’m experiencing a side effect not on the list. Fullness. I can’t eat a whole meal. I have to have several light meals. I fill up quickly and bloat. Maybe it’s due to the water consumption.

Needless to say, I’m careful about my food consumption.

Loss of temperature control:

I’m not surprised. If I am suffering from chronic dehydration, then this makes sense. I’m sensitive to both hot and cold, whereas the label only specifies heat intolerance as a side effect.

Body Aches:

This is listed, but I didn’t think I’d get it. This came as a surprise. The first few mornings, I couldn’t move. And lately, it’s only in the evening. My back tightens, and I get vicious knots and tender spots, the likes of which I haven’t experienced since my teens.

I have a plan to cure this one. My posture has gotten pretty bad since I stopped running and doing yoga. Instead, I’m going to do some on demand cardio, on demand yoga, and Wii yoga. Hopefully, it’ll strengthen the muscles I need for posture and help me shed some more pounds for better flexibility.

Emotional flatness:

Okay, not completely. I feel like my emotions are muted, though I’m still short-tempered. There just isn’t anything in there. I’ll just sit there in this kind of nothingness. It’s not emptiness, or a void. It’s more like a vacuum. My head is mostly quiet, minus the new phenomenon of songs that just pop up in my head and play repeatedly.

I find that I just don’t care. I mean, I’m still irritable, but it passes pretty quickly. But mostly, it’s apathy.

Increased libido:

This is not a side effect on the list. I find that I’m thinking about sex a lot more than usual. I fantasize about sex. I crave it. I can’t wait to have sex.

One thing that started occurring that never did before was lust. Since I’ve been married, no other man could grab my attention. Now, I am seeing men differently. They used to just be people, and I was this seemingly asexual creature. Now, I can see physically attractive qualities, and think about them in a sexual nature.

No, I don’t fantasize about these men. They’re just suddenly pleasant to look at.

And that’s about it. I could have done a lot worse.

What side effects did you have?