Abilify, Not I : Adventures in Antipsychotics

Lately, I have written a series of posts over the last two months describing certain troublesome symptoms I associated with the worsening of Bipolar Disorder, or the potential for comorbid disorders.

In my last post, When Medications Go Wrong, I briefly wrote about my recent discontiuation of the pharmocological treatment using Abilify as part of my medication regimen:

Recently, I stopped my Abilify.  Admittedly, it was because I noticed an interaction between the Abilify and my weekend consumption of alcohol.  I started to find that I would fall asleep soon after taking it on Friday’s while we drank.  I decided that I would just stop over the weekend, and continue during the weekdays as normal.  But, eventually, I just forgot to take it at all.  And soon, I started to notice an improvement in my worsening condition.

I went on to describe some of the awful side effects I was experiencing as a result.  However, the list was truncated for the sake of keeping word count down.  The description is rather limited in terms of accurately depicting exactly what I was subject to.

  • Cognition Disturbances and Memory Fragmenting.  Originally, I wrongfully blamed Lamictal in Vitamin L : Medication Adventures for my aphasia-like symptoms.  The disturbances felt like aphasia.  At first, it was almost indescernable.  I started word dropping again, meaning I would be reaching for a word, but was unable to grasp it.  Instead, I would be able to get to every synonym around it, however, those words did not fit the exact context.  Eventually, it became a more severe form of word dropping, and I found myself dropping sentences entirely at the loss of any word or synonyms around it.  It progressed into entirely dropping conversations at the loss of a sentence.  Then, I found myself

    I started forgetting things again.  These were simple things, like losing my purse or shoes in the house.  It seemed like just a simple case of forgetfulness, maybe stress related.

  • Emotional Blunting and Partial Flattening.  I had never had too much trouble with emotional blunting in the past.  While I’ve found myself in times where it was difficult to express my emotions, this didn’t indicate a lack of emotional response.  I describe it as a partial emotional flattening, because it wasn’t an entire lack of reactivity.  It felt like my spectrum of emotions had been significantly reduced, although not completely removed.  There was a certain inaccessibility to certain strong emotions.  Rather than completely removing extreme emotions, it threw a wet blanket on top of them, leaving them to bubble under the surface.  So, the emotions still existed, but were muted and unable to be adequately expressed.

    At it’s worst, I began to lose most feeling entirely, with the exception of irritation and the sensation of boredom and fatigue.  I began to lose love and my attachments to meaningful people and my relationships with them.

  • Dissociation I touched on a summary of the dissociative symptoms that Abilify had brought on.  I have been writing articles on the experience throughout the last few months on the subject, describing the feeling in great detail, but remained unable to exactly identify is appropriately.  The dissociation probably occurred as a response to the prior bullet points.

    The dissociation cited was experienced as a removal of self and removal from my own life.  I had felt as if I had been separated from myself and my world.  It was a feeling of something being stolen from me, or something fundamentally inaccessible.  Like, I was being locked out of my own life, or becoming transparent and just fading away.

  • Worsening of Depressive States.   This is probably a direct result of the first three bullet points.  I started to disengage from my life.  I lost interest in just about everything.  Most things were considered to be either boring or tedious.  Important things started to lose meaning.  This was experienced as a part of the emotional flattening, but it caused a concerning and distressful reaction.
  • Exacerbation of Social Anxiety Since I had lost the ability to carry on a conversation and found myself completely disinterested in socialization, my social anxiety went through the roof.  I simply didn’t care about anything anymore, especially trivial things I used to find interest in.  Therefore, I found it difficult to carry on a conversation.  This caused extreme distress in social situations, and encouraged further isolation.
  • Disturbed Sugar Levels.  While I have no concrete proof in terms of tests, certain symptoms have come to my attention.  They are notated below in the next two bullet points as thirst and weight gain.
  • Loss of Sensation of Bodily Hunger, Thirst, and Fullness.  Within the last few years, I started to become more in tune with my body.  I was able to feel the sensations of hunger through my sugar level, which probably caused the loss of bodily hunger.  The disturbed sugar levels probably also caused an extreme thirst that could not be quenched.  At first, I craved water.  Eventually, I started to put the soda back down, which probably caused part of the weight gain mentioned below.  And I felt an extreme pressure in my stomach, which was also exacerbated by the influx of so much fluid.
  • Extreme Weight GainTruthfully, I don’t dare get on a scale at the moment, so I am unable to notate at this time exactly how much weight I’ve gained.  By the fit of my clothing, I will estimate that I have gained somewhere between ten and fifteen pounds in the last three months.  That is a substantial gain for me, especially since I was losing weight prior to the start of this medication.
  • Exacerbation of Eating Related Problems.  By all definitions, it’s completely possible that I am living with an undiagnosed eating disorder.  However, I am not entirely convinced, since it isn’t an ongoing and prevalent problem.  Therefore, I define it as eating related problems and difficulties.

    The concern for weight gain and the sensation of fullness caused a very terrible reaction of binging and purging.  I was unable to control my eating, as notated above, therefore the sensation of extreme fullness would cause me to perceive the overeating as worse than it actually was.  Unfortunately, this led to a very vicious cycle and encouraged further weight gain.

  • Disturbed REM Sleep.  I was waking up tired, and noticed that it felt like I had stopped dreaming.  This caused my mental state to take a considerable dive.  It caused extreme fatigue and excessive, unproductive sleeping.

While I am cleared of most dissociative symptoms, emotional flattening, and my depressive state is lifting a little, some side effects have remained.

  • Cognitive Disturbances.   The aphasia-like symptoms remain, but to a lesser degree.  I am back to just being a little forgetful, and have some minor word dropping.
  • Memory Fragmenting.   Some of my memories remain dull, but seem to be returning.  However, most of the last three months remains inaccessible.  It may never become accessible, due to the disruption in the formation of short-term memory.
  • Disturbed Sugar Levels.   I am still thirsty, but I am no longer engaging in carbohydrate seeking consumption behavior.  I figure it will take awhile before my sugar is regulated properly again.
  • Weight.   Thankfully, my weight does seem to be coming down.  I have only been completely off of the medication for less than a week, and my clothes are already fitting better.  I’m going to assume that in addition to the weight gain, I was retaining water and constipation.  My regularity has come back, and I don’t feel as puffy as I did

Unfortunately, I am experiencing a return of some of my milder psychotic symptoms.  In Imaginary Enemies, I described a cognitive disturbance I described as “The Voice”“The Voice” can be characterized as a singular persona, as I wrote about in Conscious, Subconscious, and Extraconscious, where I described a theory of a third consciousness that exists between the subconscious and the conscious mind.

The Extraconscious is postulated as where the persona(s) reside, laying in semi-dormant waiting, perfectly aware of the current reality that is being experienced.  “The Voice”, in more severe psychotic states, can be experienced as a separate entity entirely, detached from the consciousness.  That is the defining line between a cognitive distortion and an auditory hallucination, when a persona detaches itself from the extraconscious as an external sensation.

As an extraconscious persona, “The Voice” can best be defined as a quasipersona, lying somewhere between Dissociative Identity Disorder and psychosis.  It is experienced as a semi-active part of the conscious mind, as the dominant persona is well aware of it’s existence and there is a certain interaction that occurs between the dominant persona and “The Voice”.

That is the best theory I can offer as to the existence and function of the quasipersona, known to me as “The Voice”.

The mild auditory hallucinations and visual hallucinations have returned, probably defined better as a sensory disturbance, rather than a symptom of psychosis.  When experiencing a sensory disturbance, it’s not full on hallucinations as described in the definition of psychosis.  There are not entities separate from the body.  They are recognized as a disturbance in the current reality, distorting shapes, colors, and contrast in the vision.  In the hearing, it is experienced as a distortion in sound, causing sounds to be sharper, duller, muffled, or louder than they actually are.  It can only be sensed by a sudden shift in perception.

So, instead of hearing things at a normal sound level, the sound volume may increase to deafening levels or may become muted and difficult to discern from nonexistent static that occurs in the mind.  My visual disturbances may be perceived as viewing the world in high contrast, extremely bright colors, and / or extra high definition resolution.  Or, they may be seen as duller than usual, muting colors, distorting shapes, and / or clouding the vision with that appearance of a veil or foggy goggles.

Intrusive thoughts have returned, but not with the same extreme nature as experienced several months ago.  In truth, they were never completely removed by the Abilify, and at some points were made worse by the drug.  Instead of experiencing them as a truth in reality, I am now able to separate them using logic.  I can talk myself off of the ledge and separate them from the reality of a situation using DBT techniques of mindfulness and distress tolerance.  Prior to the cessation of Abilify, I was unable to utilize those techniques.

I don’t mean to put anybody off of treatment with psychiatric medications, but I felt this was important to document and have as a resource on the internet for anyone who is thinking about taking the drug.  Some of these side effects aren’t listed in the pamphlet, as they are probably isolated to a condition.  But, I feel they are still a distinct possibility for anyone who is being treated for similar conditions.  It is vital that this information be notated and readily available for medication education purposes.  This information probably should not be generalized to all psychiatric medications, especially in the class of antipsychotics.

 

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When Medications Go Wrong

For years, I’ve pretty much been medicating myself.  I take my scripts home and medicate how I see fit for my situation.  I realize that makes me medication non-compliant.  The trouble I come to is my trust in doctors.  I have been burned so badly before that I find I have a lack of faith in them to know how they are really treating me.

When I was in my teens, and being treated for Major Depressive Disorder (misdiagnosis – strike one), I was put on high doses over a slew of medications for years with little result (overmedication – strike two).  I suffered extreme side effects, with little done to relieve them.  I took Zoloft in increasing doses over a three year period.  I continued to complain of extreme fatigue, anxiety, motion sickness, and periods of flu-like symptoms.

The doctor’s answer?  More medication.  It came to a head when I found that if I sat still for too long, I would drift off to sleep.  Sitting in school became impossible, and I was sleeping fourteen to sixteen hours a day.  Eventually, I was put on 300 mg of Zoloft with Provigil to combat narcoleptic symptoms.

It was at the doctor’s suggestion that I continue to exceed maximum dose and go to 350 mg that my mother finally put her foot down.  “Put her on something else.  We’ve put three years into this, and it clearly isn’t working.”  And much to my doctor’s chagrin, I was switched to Lexapro.

Wrong answer.

Immediately, I started to have dissociative symptoms.  I recall laying in my room, laying on the floor, and staring at my ceiling in the dark.  My mother stood in my doorway, just observing me.

“What are you doing?” she asked.

“Nothing,” I answered blankly.

Yes, I was finally awake.  But, every moment was torturous.  I lost my sense of self, and started to drift away.  My memory began to fragment, and I sunk into a deep, desperate depression.  I was frantic and crazed, while feeling numb and blank at the same time.  I became paranoid, and started to assert that everyone was doing things against me.  They were intending to harm me, and I started to give meaning to harmless comments and phrases.

I attempted suicide several times in the first month.  The cutting became so bad that I was doing it in rather public places.  I was caught one time at my boyfriend’s house, and I had a dull exacto set ripped off of me and immediately chucked into the local creek.

We were unaware of all of the side effects at the time, because all of the medications I was placed on were brand new.  When a pharmaceutical representative left her office prior to my visit one day, it became clear that I had become an experiment to brand new medications.  I was taking expensive, largely untested medications for her financial benefit.  Strike three.

I had gained thirty-five pounds over a six month period.  I was 4’11” and 165lbs.  That put me at a BMI of 33.3, and in the obese range.  And despite all of my best, and even worst, and unhealthy efforts, I still couldn’t manage to get my weight below 145lbs.  I was starving myself on 900 calories a day, and I still hovered around obesity.

I couldn’t afford my medication once I was kicked off of my parent’s insurance, and I just decided that since it failed to ease my symptoms, I would stop taking the medication entirely.  They failed to mention that if I attempted to stop the medication cold, then I would be stricken with the worst withdrawal I had ever known.  It was a good thing my parents had been through this before with my father, because they knew how to ween me off.

It took me years to get the rest of that weight off.  But, by then, the medication had already done long lasting damage far worse than just weight.  I had begun to develop a drinking problem.  I had engaged in risky sexual behavior due to hypomania.  And it sent me walking with bad eating habits.

After that, I distrusted doctors and medication entirely.  I had lost faith in mental health treatment.  I was left with a feeling that I didn’t have a disorder at all, and instead, it was just me.  I was convinced that I wasn’t treatable.

It took a lot to make me realize that I was in desperate need of treatment.  I had taken psychology courses and was suggested by several psychologists in my college to have bipolar disorder.  I knew my behavior wasn’t “normal”, just as I had always suspected.  It took the my marriage, my depleting mental health of my husband, and the birth of my son to encourage me to start treatment again.

Three years, four doctors, and a another slew of medications later, and here I am, again the victim of overmedication and bad medication choices.

Recently, I stopped my Abilify.  Admittedly, it was because I noticed an interaction between the Abilify and my weekend consumption of alcohol.  I started to find that I would fall asleep soon after taking it on Friday’s while we drank.  I decided that I would just stop over the weekend, and continue during the weekdays as normal.  But, eventually, I just forgot to take it at all.  And soon, I started to notice an improvement in my worsening condition.

Suddenly, I was able to think again.  I started to feel more like myself.  I became more aware of what I was thinking and feeling, and I finally started actually living in the world around me.  It actually felt like living again.  And that’s when I noticed the weight I had put on.  I had fell victim to Abilify’s weight gain, among other things.

I can blame the dissociative symptoms on Abilify.  It had created an emotional flattening, and I started to dissociate from myself and my world.  It had robbed me of my ability to write and care for my family appropriately.  I wasn’t feeling, so I wasn’t caring.

The anxiety?  Well, I recently started to run out of a supply of Wellbutrin I can’t really afford right now.  I started to cut back to make ends meet, and I discovered that was starting to subside.  Other than rebound depressive symptoms, I was feeling better.  It didn’t matter to me anyway.  I was still going through crying jags, whether I was taking the Wellbutrin or not.  The difference was between whether they were loaded with distressful urgency to cut or not.  I decided that I would prefer to keep my near streak of four months without cutting.

I don’t blame my doctor.  He’s an old school doctor who works off of the biological model and treats symptoms.  I have declined therapy several times, though my requests to be seen since have not been honored.  All of my symptoms point to mild psychosis in general, aggravated by extreme life stressors.

I blame myself for not listening to myself and taking action sooner.  Treatment happens on both ends, and I have not been holding up my end of the bargain.  I have not been mood charting, and I have not been notating subtle symptoms.  It has become abundantly clear to me since my extreme meltdown and psychotic break during the summer that I had been probably Bipolar 1.5 all along.

Though I don’t experience full on mania, I do experience mild psychosis, practically all of the time.  I have not been pressing the issue about invasive thoughts, paranoia, “The Voice”, or any of the mild hallucinations that I experience.  Only when I had my break did I bring it to my doctor’s full attention.  And I was met with extreme medication.

Personally, I’m at a loss as to what to do.  I’m damned if I do, and I’m damned if I don’t.  I noticed last night that “The Voice” has returned, even if it’s benign (right now).  I don’t want to be overmedicated, and I can’t risk gaining anymore weight.  The weight is worse for my mental health than anything else.

And it completely screws up my bodily function.  Now, I’m experiencing weight related problems again.  My knees and back hurt.  I have acid reflux near to the point of anorexia again.  Sexual dysfunction is destroying my sex life, my self-esteem, and hurting my marriage.  And I’m back to full on social anxiety, because I’m too self-conscious to function.

But, at the same time, I’m aware that I need some kind of medication.  While, for now, I’m better off without it, the day will come where I am asked to step up, and perform at a higher function.  My family, including Finn, has been very great about my general lower function and picking up a lot of the slack for me.  However, this won’t last forever.

The Costly Mistake

“A mistake was made.  Dr. G. needs a half an hour with you, so you have to come in at 4:15PM.”

The third attempt in three days on my doctor’s part to reschedule me.

I panicked.  The plan was for Xan to come home and cart me off to my 5:30PM appointment.  That in itself was stressful enough.  Xan rarely gets off of work on time anyhow.  I would be playing this pacing game where I wear a rut into the corkwood floor of my eroding living room.

“But, I can’t.  I don’t have transportation.”

She was uncompromising.  “Dr. G. leaves the office at 5PM.  It’s 4:15PM or she will not see you today.”

I anxiously stammered, “I’ll see what I can do.  I’ll call you back.”

In her cheery, patronizing voice she said, “Okay, we’ll pencil you in for 4:15PM.  Hope to see you then!  Bye!”

And the phone went dead.  I was cast off that easily.  Complete disregard for my needs.  She’s one of those people who is just doing their job and nothing more.  Patient care doesn’t matter.  My threads started coming loose as I desperately grasped at the fabric that remained.  Hope was dimming.  Trapped in my head, trapped in this perpetual hell called my life, completely alone with this demon so inadequately named Bipolar Disorder.

For a moment, I let the wholeness of the situation set deeply into myself.  I read my prescription bottles closely and they said in big, haunting letters NO REFILLSWaves of panic nipped at me at the shoreline.   The tide suddenly grabbed me, and ripped into murky, black waters with the undertow.  There was no sense of what was up and what was down.  The air escaped me, as if being viciously sucked from my lungs, and they shriveled into nothing.

My fingers flew fast as I texted Xan.  The idealization took control as my head filled with these surrounding waters.  My mind swam around my skull, looking for solutions.  Grasping at the fabric, the tearing fabric holding my sanity, my hope, any kind of connection to reality and sanity.

“Hold for a moment on this.”

I am a business call.  Twenty minutes elapsed.  It was like standing in a queue for my husband’s attention at a clear crisis.  Those glimmers faded as I clung to anger.  Anger, my failing life preserver as it began to deflate into complete hopelessness and despair.  I trashed with distress, but to no matter.  Anything.  Anything . . .

“I’m calling the scheduler.”  I warned him that wasn’t wise.  The ultimatum was set forth.  4:15PM or not at all today.  4:15PM I could see this new doctor, and maybe in coming days, I could exit the tunnel of misery and dimness.  I could reclaim myself, my life, and everything that awaited me on the other side.

I wanted to beg him.  I wanted to get down on my knees and plead with him to leave work early.  He would have put his eight hours in that day, and it would have been alright.  Be my knight in shining armor.  Save me.  Save me from myself.

I started crying, huge, loud sobs belting through my house.  My son, my little four year old son with autism spectrum disorder approached me.  And he said, “Mommy, are we okay?”  I cried even harder, despite any efforts to control myself.  My son’s first four word sentence, his first appropriately placed words relevant to the situation, occurred because his mother was hysterical.

I said to him, wiping the tears from my face and pushing everything down, “Yes, Beast.  We’re okay.”  I wish I could have meant what I said to him.  His first question, and I had to lie to him.

The phone rang, playing a melody that I hope meant promise.  Promise that someone had conceded or made an exception for my desperate pleas.  I answered despondently, even with my head overflowing with idealistic notions of the outcome.

“Here’s the good news,” he started.  My heart seized up, anxiously hopeful.  “The nurse agreed to put a fill in for your prescriptions.”

“And my appointment?”

He continued, “It’s a bit of bad news.  Dr. G. is booked up until December 11th.  I scheduled you in for that day.”

I choked on my own voice, the bile rising from my stomach and the wires of my brain sparking as they frayed.  “December 11th?!  I can’t wait until then!”

“It was the soonest she had.  It was the best I could possibly do for you.  But, at least you have your medication until then.”

The tears finally came, screaming down my faced as I sunk against the sink.  “I need a doctor.  I need to get this fixed.  I live every single day in this perpetual hell.  This was my last hope, my only hope.  It has been stolen away from me.  Is there nothing we can do?”

He started to become cross, “What do you want me to do?  What more could I possibly do?”

“You can’t leave work?” I pleaded desperately.

“It wouldn’t matter anyway,” he informed me, “The scheduler already complained to me about your poor attendance record, and gave your appointment to someone else, anyway.”

My poor attendance record?! I screamed.  “I have no way to get to appointments!  And people keep blowing me off, like I don’t matter!  Like I’m not in a bad way! Like this can wait and as if I’m doing so well.  The only time I get to go to an appointment is to get this stupid medication that doesn’t even work filled.”

I paused, only for the brief moment it took for catch my already shallow breath, “I don’t know if anyone noticed, but I haven’t been well.  I have spent almost my entire year in one episode or another.  It’s beyond discouraging.  It’s thrown me into the jaws of despair and hopelessness that I will never get any better!

We sat in silence for a few minutes.  I sobbed violently, just waiting for some kind of word.  Some kind of solace.  Any rescue from the deep, dark recesses of my own caged mind.  Finally, I asked, “Are you still there?”

“Read your text messages,” was all he could respond.

I have people three feet from me.  I can’t talk about it.

My being shattered so deeply that I had felt fractures of each bone in my entire body.  I became enraged at his choice.  Work.  Work over his ailing wife.  No exceptions could be made.  And in his mind, I’m sure the thought had occurred, This too shall pass.

“Goodbye,” I choked out without another word.

The anger, the scraps that remained, boiled in the water.  The blackness around me turned scarlet and thick like the blood coursing through my veins.  I grasped my phone with a crushing forced and launching it against a wall.  It exploded into three pieces, the unit, the battery, and the backing.

Screams erupted out of shrieking sobs, “I can’t go through this hell anymore!!!  Why do I have to go through this?!  Why?!  Endlessly, I raved and ranted like a mad woman.  A mantra repeated, “I can’t do this!!!   I can’t!!!”

“That job!  I hate that f***ing job!  His work, his work!  Nobody cares!  Nobody!” I grabbed my “Teacher”coffee mug from the cabinet and smashed it against the linoleum floor.  I’m not a teacher anymore.  It is a lie every single time I drink from that mug.  I am a nothing now.  I am a nobody.

I stood there staring at the pile of the remaining shards of ceramic, heaving panting sobs.  I slid down against the stove, next to the pile and pulled me knees to my chest.  A ball.  Nobody can hurt me.  I can’t hurt me.  No one can come near me.

Alone.  I am slated to be alone.  Alone in my own mess.

I WANT TO DIE.

It’s all I could think.  There is no life ahead of me that I want to live.  It’s only a life full of pain and misery, where I am tragically locked in my head.  No one wants to hear of these complaints.  I have no perspective to gain.  No more words left to give the world.  No hope for myself or anyone else.  I have nothing.  I am nothing.  I will always be nothing.  To anyone, anywhere.

And if I were to say goodbye, I would be wished well.  I would be let go without another word, another prayer or any thoughts left for me.

There is no treatment that will make better.  I will always be like this, with this crushing weight upon me.  My eyes are constantly fixed on the rear view when I’m not navigating the endless series of trials within this tomb of a labyrinth.  Even in the fleeting happy, peaceful moments, I will always be cautiously watching over my shoulder for the monster who will eventually gain on me, and overtake me.  I will never find happiness.  I can never find a place of peace and solace within this madness.

A plan started hatching.  There will come a day where I will take my life.  I can’t truly know when, but the day is inevitable.  I must make preparations.  I took a handful of Xanax and considered washing it down with a swig of rum.  No, it would be bad enough that I am doped up around my child.  My child.  My beautiful baby has to witness this in his already confused life.  It fueled the fire to hate myself even more.

I will get my house in order.  I will not leave a mess to clean up, because there will be enough of a mess when I am gone.  I will get my son into a program and have him taken care of.  My belongings will end up in boxes, so that they may easily shipped off.  I will leave nothing but mournful whispers behind.

I wish I had something inspiring to say.  I wish I could tell you that I went on about my life, went to class last night, and came back in better shape.  I wish I could tell you that the rays of hope descended upon me, and I am determined to hold out until December 11th.  I wish I could tell you that I look forward to better days, where this awful, gnawing feeling dissolves into some kind of happiness.

But I can’t.  I can only give up and start to let go.  I can only start to say my goodbyes and write my heartfelt letters to those that I love.  Because in the end, whether I want it or not, this is my fate.  To eventually succumb to my illness.  To eventually self-destruct.

Just Snap Out of It

Society has developed some seriously bad attitudes toward mental illness.  It’s no surprise.  We see it attached to the stigma of it.  We’re treated like lepers, as if this were a terribly contagious thing.

Depression is no exception.  Today, a lot of people have been discussing the topic of the “Just Snap Out of It” phenomenon that occurs out there.  Honestly, there is a saying out there about how if a person hasn’t experienced it, then they can never truly know.  A person who hasn’t experienced clinical depression, either in the form of MDD or BP depression can never truly know it’s depth and breadth.  It is an all encompassing monster that claims every last bit of life and any possible joy that can come from it.

Having Bipolar Disorder, I am a person who naturally experiences some sometimes pretty obvious mood swings.  And the attitudes toward it are so completely off.  I have never had a person treat me poorly while I was in a manic episode.  Not one.  Not even when the plainly awful behaviors were showing.  Each person seemed to find it charming, amusing, or interesting.  Even when there were moments where I was so out of control that I was scared out of my wits, not a single person around me seemed to notice that there was something absolutely wrong with it.

No, my energy and spirits were high.  I would act impulsively, and people would take it as spontaneity.  I’d be overly, annoyingly chatty, and rudely interrupting others, but they took it as being outgoing.  Everyone seemed to think that was a sign that I wasn’t depressed anymore.  They seemed to think that it was some kind of miraculous recovery from “being like that”.

People only seem to take notice when I am depressed or mixed, like it’s some kind of disease that I choose to be afflicted with.  And the comments are absolutely endless, because everyone seems to have their own opinion about it.  It’s as if they consider themselves to be the authority on depression, anxiety and sadness in general. I will constantly hear phrases like, “Get over it” and “Get a grip” as if just snapping out of it were an option for me.

Meanwhile, people without mental health diagnoses start flinging clinical terms around, like they had some true application to their fleeting, shallow emotion.  For instance, “Oh, I’m so *bipolar* today”, instead of just saying that they are moody, or women arbitrarily making a comparison between PMS and Bipolar Disorder.   Or “I’ve just been so depressed lately”, to reference a little bit of discontent or sadness.

It’s not cute. It’s not funny. No one with those diagnoses thinks that it’s witty that someone is taking a serious clinical term with so much guilt and stigma that it could bring down a religion, and applying it to their BS, frivolous emotions!

It does everything it can to minimize those conditions.  It puts it in a light that we have some kind of real control over it.  As if it were something that a person can just “snap out of”.  It implies that a person chooses to be disordered.  It also puts a shameful connotation of attention seeking behavior.

Yeah, it’s the life, let me tell you. If I were doing anything for attention, it wouldn’t be this. It would probably be something more hilarious, like plastering myself with an obscenely worded banner and rollerblading through Downtown. Depression isn’t newsworthy, but that sure is.  Or maybe I’d be doing something a little more productive or noteworthy, like finding a cure for cancer.  But no, my depression is just that interesting that I would choose to gain that much needed attention from people I don’t even know or care about.

I have to wonder if the general public has to be so naive that they would actually be jealous over it.  So much emphasis is put on the “just get over it” ideals, as if that were possible. If I could will myself out of this state, don’t you think I would do it already? It would be more logical to think that I want to reclaim my life and be a productive person.  But no, according to others who are ignorant enough of mental illness, I am perfectly content to have disordered behaviors.   Sure, who doesn’t love ignoring their kid because the voices just got too loud? Personally, I love gripping my ears and screaming, “SHUT UP! SHUT UP! SHUT UP!!!!”

And as a result of this blatant ignorance, I am really starting to believe that some are just plain jealous.  Because, they seem to think that those with disorder aren’t being responsible for their emotions and behaviors that result.  I certainly have quarrels with wanting to thrust a sense of selfishness and entitlement out there, because it’s what I have to do to take care of myself and my own in this world.  It’s those same people that shove themselves and their ideals down other people’s throats, only to make them feel bad. Misery loves company, and we’re perfect targets, right?

The point is this.  If a person is out there reading this and getting offended, it’s time to take a step back and think hard.  Is it so fair to be so judgmental?  Isn’t it about time to take a look from another perspective?  Does a person with a congenital disorder choose to be symptomatic?  It would be an entirely different story if I were refusing treatment, but like anyone else, I am keeping my appointments and taking my medication according to doctors orders.  We don’t blame someone for their symptoms when they have a seizure.  Why should this be any different?

Let me assure everyone.  If could have snapped out of this disorder and been a “normal” person, I may have done it, instead of living this ongoing nightmare.

Blog for Mental Health 2013 Badge Voting

The new year of 2013 is coming upon us, and quickly.  Last year, I started Blog for Mental Health 2012.  For those that are unaware of what Blog for Mental Health 2012 was, I’ll fill you in quickly:
Many people who suffer from mental health disorders do so in silence.  And prior to many of our own blogs, we may have done just the same.  By taking the pledge to Blog for Mental Health in the year of 2012, we celebrate our own voices that speak up in our own unique ways.  We pledge that not only do we blog about mental health topics for ourselves, but for the inspiration of others to raise their voices and tell their own stories of their own personal experiences with mental health disorders.

For more information about Blog for Mental Health 2012, visit the page.

I fully intend on continuing this pledge and tradition into the new year of 2013.  Therefore, I’ve gotten started early on the design for the Blog for Mental Health 2013 badge.  Last year, it was created solely on my own.  But this year, I’d like others to participate in selecting the official badge to represent the pledge.

The nominees are:

#1

#2

#3

#3

#4

#5

If you have any suggestions for combining badges, they are quite welcome.  Let the voting begin!

PS:  Please visit the comments section for additional badges that were created after the first run.

The Friday Confessional : Romancing Suicide

 

 

Though I confess the things that are most intimate to me, I don’t know if I am accurately painting the picture of the real me.  To everyone here, I am Lulu Stark, the writer, the mother, the wife, and most importantly, the woman who bares herself in the name of mental health and disorder awareness and advocacy.  But, I wanted to put some truths out there.  The uglier side.  The real side.

I only Lulu Stark in the persona.  The one that you read about.  The antihero, the antagonist, protagonist, the victim, the perpetrator, the survivor and occasionally, the hero.

What I don’t talk typically talk about is one of my darkest, sickest secrets of all.

 

Suicide.  I regularly have suicidal thoughts and occasionally ideation.  The little voice goes through the back of my mind, sometimes as an unintelligible whisper and other times as clear as a bell, I want to die.  I want to kill myself.  It would be so easy.  No one would miss me.

I imagine ways it would play out.  I idealize all of the scenarios of suicide.  In a way, it seems I’m under it’s spell.  It seems like the only way out of this torturous world of disorder and dysfunction.  I am more crippled by my illness than I let on.  I feel pathetic in my bones, and I desperately search for my solace in this place of distress and despair.  An endless string of hopeless days and bottomless pits.

I fall deeper, clinging to my last shreds of hope.  I am flirting with suicide, with his silver tongue, soft, familiar caresses, and honey sweet kisses on my neck.

I see a sturdy rope swung around a rafter in my basement, tied with a tidy slipknot instead of an impossible noose.  I stand on a rickety chair, dressed in my Sunday best, leaving a pretty, cold, lifeless corpse behind.  The shell of a woman who never really existed.

I stand with a glass of juice and a bottle’s worth of blue pills in my hand.  I am ready, stripped to nothing but a bathrobe.  Down the hatch, the medication leaves a bitter aftertaste.  I draw myself a hot bath and arm myself with a razor.  And then, I wait.  I wait until I am almost seeing double, and world starts to blue around the edges.  I dig the razor into my wrist and drag it with all of the force I can up to my the bend of my elbow.

Or, I just await death.  I lie in the tub, feeling myself slip away under the surface of the water.  In my mind, I imagine all of the people that would be thankful that I am finally gone.  How in a year or two, I will become a distant memory that only leaves the tiniest pang.  How my sullen face starts to fade from everyone’s mind and any trace of me begins to disappear.  I think of how easy the clean up would be.

Or maybe, I would clean myself up to begin with.  I would be powder fresh in a pretty pastel little girl dress I bought for the occasion.  I would empty all of the contents of my medicine into my stomach, washed down with an entire bottle of vodka.  I would tuck myself into a warm bed, and swaddle myself in blankets.  It would look like sleep at first.  My final sleep.  My resting place.  The only place in my life where I ever felt warm and safe.

 

For the record, I’d never do it.  There is an uglier side to suicide that I’m painfully aware of.  It could possibly be the most selfish act I could ever commit.  The finality of it all is too much for me to even wrap my head around.

My son asks where I went when I am gone for an hour for class.  I imagine his confusion and sadness when he comes to see that his mother will never return. I imagine the possibilities of who would raise him if I were to be gone for good.  He would likely fall into the hands of my own parents, and I would be sentencing him to a similar fate that I experienced.

There would never be enough of an apology for my Xan.  A piece of him would die inside, and he might go mad himself.  There wouldn’t be another out there for him.  He couldn’t possibly recover.  Leaving him to his own devices at work, cutting off communication, it’s too much for him to bear for a few hours.  What if I were to be gone for the rest of his lifetime?

And then there’s the matter of the afterlife.  What comes after death?  Through my Christian upbringing, I fear the day of judgement and the sentencing to an eternity of hell, separated from my friends and family, endlessly tortured in unimaginable ways.  Ways that are beyond my comprehension.

But, what if there is nothing?  What if I sacrificed my life for a world of nothingness?  What if a person just dies and there is nothing behind?  What if I am condemned to walk this Earth as a true ethereal being, and not just the kind I feel as a flesh and blood person?  I stand there and watch as people file in for my funeral.  I see my family overlooking my lifeless body, consumed with grief.  Then, I get to watch my family and friends mourn the loss, as someone irreplaceable that met a tragic and unfair end at my own hand.

Sometimes, I feel as if I am condemned to life.  Sometimes, I feel like I’ve chosen life over the alternatives.  Sometimes, it’s for the sake of my family and friends.  And there are those brief shining moments where I live life as the gift it was meant to be with the promise of tomorrow.

Riding in Cars with Boys Again

It set him off.  He said, “And now there’s going to be people we don’t know traipsing all over our house again, judging us.  And there you were, making all of these decisions without me.”

Yesterday, Xan and I attended an evaluation for our son, Beast, for entrance into a special preschool for children with special needs.  Our son was diagnosed with Pervasive Development Disorder – Not Otherwise Specified in June 2011 while he was receiving Early Intervention Services.  For more information, visit the original post, “Riding in Cars with Boys”.

Needless to say, the evaluation didn’t go well.  They never really do.

I was furious.  I retorted, “I have to make these decisions, because you don’t.  You haven’t been there up until now.”

“I want to wait and think on this.  It’s happening too fast.  I can’t process it.  I don’t think we should start to seek services until November at the earliest.”

I went through the roof.  I threatened, “If you stand between me, our son, and getting him help, I promise you that I will leave you.  He needs these, and I will do anything to get him there.  It’s been too long already.”

“Fine.  Then leave,” he said shortly.

I stated, “I don’t want too, but –“

He interrupted, “No, I don’t want to hear it.  You leave then.  I’m done here.”

There was a long period of silence, where I felt the schism and then the great void opened up.  Something ensnared me, and pulled me by the ankle faster and faster toward the Great Below.  I clawed and scraped, desperately trying to hold on.  But, it was no use. I gave up.  I was dragged into The Hollow, where everything went black around the edges, and the rest of me was numb inside.

It’s as if I were suddenly disembodied, sitting in the back of the car with my son, watching the whole thing play out.  He went on about how this was such a danger to us, and I blankly told him that I didn’t care.  I was beyond caring.  I had a mission, and it no longer involved any real part of me.  It required my participation, in the very least.  Only a presence, just a husk of a woman as a placeholder for what was and what might have been.

“You said we needed a social worker.  I agreed.  Now we have one,” I argued flatly.

“No, this isn’t right,” he angrily disagreed, “I don’t need someone in my own house judging my parenting.  Judging us, wondering exactly how fit of parents we are to raise him.”

I struggled, “And what do you think is going to happen if we don’t get him services?”

“I don’t know, but it has to be better than this.”

I finally found my gusto and returned to myself for a flicker of a second to drive it in, “I’m not going to stand by and let my son turn into a dangerous retard, and end up in a special school, because someone was too afraid and disengaged to get him help!”

“What, like how you stood by when you were going through whatever you were going through?”

It hit me like a wrecking ball, shattering every bone in my body, every bit of what little cohesive world I had remaining.  I couldn’t say anything in return.  The knife had to be sturdily wedged between my ribs, and my life’s blood gurgled and oozed out.  The life drained from me, and I was once again driven backward, ears ringing violently with silence.

And then there was this great nothingness that emanated from within and saturated the air around us.  Instead of choking, I breathed it in eagerly, letting the numbness wash over me.  I was already far over the Precipice, eyes wide open, watching the ground come at me at the speed of sound.  I would end it all in one tiny little snip of an already fraying thread.

We sped over the hills and the valleys of our hometown, and I gazed out the window to stare at the autumn-colored trees as they passed.  I’m in the autumn of my existence, a voice narrated, echoing the caverns of my empty mind.  I watched from outside myself as he glanced over at me.  I never met his eyes.  I just continued to stare, the whole world muted into something unintelligible.

I could hardly make it out, “I’m sorry.  I’m just so scared about what this means for him.  Today, when I saw him being evaluated, I see an entirely different boy from the little boy I see to be my son.”

“I understand,” I murmured almost robotically.  In truth, I did.  He went on to explain his position, but the world remained too washed out.  The sound was distorted by static.  He went on to describe our son’s awful behavior during our session, and all I could manage was a whisper.  “Now you know how I felt when I did this alone.”

He had finally come to understand my position.  He was finally seeing the seriousness of the situation, and the dire need to get our son the help that he requires for his special needs.  “I’ve seen this significant backslide in the last few months.  He was doing so well.”  But, I was too exhausted and disconnected to explain it again when he asked.  I provided minimal answers.

The apology came too little too late.  If only there was an answering service for when I checked out completely.

It was completely unfair to him.  It was unjust to let him continue to sit in the dark while he was obviously trying to come back into the light, where truth and hope awaited him.  But, I couldn’t return when the threat still existed.  I had been knifed into oblivion, my soul spilling out onto the jagged rocks beneath me.  If I came back too soon, the voices would emerge and tell me lies.  Sweet, angry little lies, and play me like the fiddle that I am.

I slipped a Lamictal into my mouth and took a big swig of the strange vitamin water I picked up at the convenience store.  My soul is already partially deadened.  I might as well keep going.

It’s the only way.  It’s the only way to cope and deal with what I have at hand.  I may have lost my ability to remember, but maybe it is better this way.  Maybe, I have to forget the pain and the fear in order to switch tracks.  Maybe, I have to forget myself completely to surrender myself to the others.  Either way, I know what I have to do, even if I don’t know how to go about doing it.

Couples fight.  Even the best of couples.  We don’t see eye to eye, and we’re often to proud to admit to the other when we’re scared and vulnerable.  I’ve learned that over the last year.  We’re not supposed to be perfect, because we are imperfect beings.  Our marriage is perfect because it is imperfect.  And I know that we’ll get through this together.