When Medications Go Wrong

For years, I’ve pretty much been medicating myself.  I take my scripts home and medicate how I see fit for my situation.  I realize that makes me medication non-compliant.  The trouble I come to is my trust in doctors.  I have been burned so badly before that I find I have a lack of faith in them to know how they are really treating me.

When I was in my teens, and being treated for Major Depressive Disorder (misdiagnosis – strike one), I was put on high doses over a slew of medications for years with little result (overmedication – strike two).  I suffered extreme side effects, with little done to relieve them.  I took Zoloft in increasing doses over a three year period.  I continued to complain of extreme fatigue, anxiety, motion sickness, and periods of flu-like symptoms.

The doctor’s answer?  More medication.  It came to a head when I found that if I sat still for too long, I would drift off to sleep.  Sitting in school became impossible, and I was sleeping fourteen to sixteen hours a day.  Eventually, I was put on 300 mg of Zoloft with Provigil to combat narcoleptic symptoms.

It was at the doctor’s suggestion that I continue to exceed maximum dose and go to 350 mg that my mother finally put her foot down.  “Put her on something else.  We’ve put three years into this, and it clearly isn’t working.”  And much to my doctor’s chagrin, I was switched to Lexapro.

Wrong answer.

Immediately, I started to have dissociative symptoms.  I recall laying in my room, laying on the floor, and staring at my ceiling in the dark.  My mother stood in my doorway, just observing me.

“What are you doing?” she asked.

“Nothing,” I answered blankly.

Yes, I was finally awake.  But, every moment was torturous.  I lost my sense of self, and started to drift away.  My memory began to fragment, and I sunk into a deep, desperate depression.  I was frantic and crazed, while feeling numb and blank at the same time.  I became paranoid, and started to assert that everyone was doing things against me.  They were intending to harm me, and I started to give meaning to harmless comments and phrases.

I attempted suicide several times in the first month.  The cutting became so bad that I was doing it in rather public places.  I was caught one time at my boyfriend’s house, and I had a dull exacto set ripped off of me and immediately chucked into the local creek.

We were unaware of all of the side effects at the time, because all of the medications I was placed on were brand new.  When a pharmaceutical representative left her office prior to my visit one day, it became clear that I had become an experiment to brand new medications.  I was taking expensive, largely untested medications for her financial benefit.  Strike three.

I had gained thirty-five pounds over a six month period.  I was 4’11” and 165lbs.  That put me at a BMI of 33.3, and in the obese range.  And despite all of my best, and even worst, and unhealthy efforts, I still couldn’t manage to get my weight below 145lbs.  I was starving myself on 900 calories a day, and I still hovered around obesity.

I couldn’t afford my medication once I was kicked off of my parent’s insurance, and I just decided that since it failed to ease my symptoms, I would stop taking the medication entirely.  They failed to mention that if I attempted to stop the medication cold, then I would be stricken with the worst withdrawal I had ever known.  It was a good thing my parents had been through this before with my father, because they knew how to ween me off.

It took me years to get the rest of that weight off.  But, by then, the medication had already done long lasting damage far worse than just weight.  I had begun to develop a drinking problem.  I had engaged in risky sexual behavior due to hypomania.  And it sent me walking with bad eating habits.

After that, I distrusted doctors and medication entirely.  I had lost faith in mental health treatment.  I was left with a feeling that I didn’t have a disorder at all, and instead, it was just me.  I was convinced that I wasn’t treatable.

It took a lot to make me realize that I was in desperate need of treatment.  I had taken psychology courses and was suggested by several psychologists in my college to have bipolar disorder.  I knew my behavior wasn’t “normal”, just as I had always suspected.  It took the my marriage, my depleting mental health of my husband, and the birth of my son to encourage me to start treatment again.

Three years, four doctors, and a another slew of medications later, and here I am, again the victim of overmedication and bad medication choices.

Recently, I stopped my Abilify.  Admittedly, it was because I noticed an interaction between the Abilify and my weekend consumption of alcohol.  I started to find that I would fall asleep soon after taking it on Friday’s while we drank.  I decided that I would just stop over the weekend, and continue during the weekdays as normal.  But, eventually, I just forgot to take it at all.  And soon, I started to notice an improvement in my worsening condition.

Suddenly, I was able to think again.  I started to feel more like myself.  I became more aware of what I was thinking and feeling, and I finally started actually living in the world around me.  It actually felt like living again.  And that’s when I noticed the weight I had put on.  I had fell victim to Abilify’s weight gain, among other things.

I can blame the dissociative symptoms on Abilify.  It had created an emotional flattening, and I started to dissociate from myself and my world.  It had robbed me of my ability to write and care for my family appropriately.  I wasn’t feeling, so I wasn’t caring.

The anxiety?  Well, I recently started to run out of a supply of Wellbutrin I can’t really afford right now.  I started to cut back to make ends meet, and I discovered that was starting to subside.  Other than rebound depressive symptoms, I was feeling better.  It didn’t matter to me anyway.  I was still going through crying jags, whether I was taking the Wellbutrin or not.  The difference was between whether they were loaded with distressful urgency to cut or not.  I decided that I would prefer to keep my near streak of four months without cutting.

I don’t blame my doctor.  He’s an old school doctor who works off of the biological model and treats symptoms.  I have declined therapy several times, though my requests to be seen since have not been honored.  All of my symptoms point to mild psychosis in general, aggravated by extreme life stressors.

I blame myself for not listening to myself and taking action sooner.  Treatment happens on both ends, and I have not been holding up my end of the bargain.  I have not been mood charting, and I have not been notating subtle symptoms.  It has become abundantly clear to me since my extreme meltdown and psychotic break during the summer that I had been probably Bipolar 1.5 all along.

Though I don’t experience full on mania, I do experience mild psychosis, practically all of the time.  I have not been pressing the issue about invasive thoughts, paranoia, “The Voice”, or any of the mild hallucinations that I experience.  Only when I had my break did I bring it to my doctor’s full attention.  And I was met with extreme medication.

Personally, I’m at a loss as to what to do.  I’m damned if I do, and I’m damned if I don’t.  I noticed last night that “The Voice” has returned, even if it’s benign (right now).  I don’t want to be overmedicated, and I can’t risk gaining anymore weight.  The weight is worse for my mental health than anything else.

And it completely screws up my bodily function.  Now, I’m experiencing weight related problems again.  My knees and back hurt.  I have acid reflux near to the point of anorexia again.  Sexual dysfunction is destroying my sex life, my self-esteem, and hurting my marriage.  And I’m back to full on social anxiety, because I’m too self-conscious to function.

But, at the same time, I’m aware that I need some kind of medication.  While, for now, I’m better off without it, the day will come where I am asked to step up, and perform at a higher function.  My family, including Finn, has been very great about my general lower function and picking up a lot of the slack for me.  However, this won’t last forever.

Just Snap Out of It

Society has developed some seriously bad attitudes toward mental illness.  It’s no surprise.  We see it attached to the stigma of it.  We’re treated like lepers, as if this were a terribly contagious thing.

Depression is no exception.  Today, a lot of people have been discussing the topic of the “Just Snap Out of It” phenomenon that occurs out there.  Honestly, there is a saying out there about how if a person hasn’t experienced it, then they can never truly know.  A person who hasn’t experienced clinical depression, either in the form of MDD or BP depression can never truly know it’s depth and breadth.  It is an all encompassing monster that claims every last bit of life and any possible joy that can come from it.

Having Bipolar Disorder, I am a person who naturally experiences some sometimes pretty obvious mood swings.  And the attitudes toward it are so completely off.  I have never had a person treat me poorly while I was in a manic episode.  Not one.  Not even when the plainly awful behaviors were showing.  Each person seemed to find it charming, amusing, or interesting.  Even when there were moments where I was so out of control that I was scared out of my wits, not a single person around me seemed to notice that there was something absolutely wrong with it.

No, my energy and spirits were high.  I would act impulsively, and people would take it as spontaneity.  I’d be overly, annoyingly chatty, and rudely interrupting others, but they took it as being outgoing.  Everyone seemed to think that was a sign that I wasn’t depressed anymore.  They seemed to think that it was some kind of miraculous recovery from “being like that”.

People only seem to take notice when I am depressed or mixed, like it’s some kind of disease that I choose to be afflicted with.  And the comments are absolutely endless, because everyone seems to have their own opinion about it.  It’s as if they consider themselves to be the authority on depression, anxiety and sadness in general. I will constantly hear phrases like, “Get over it” and “Get a grip” as if just snapping out of it were an option for me.

Meanwhile, people without mental health diagnoses start flinging clinical terms around, like they had some true application to their fleeting, shallow emotion.  For instance, “Oh, I’m so *bipolar* today”, instead of just saying that they are moody, or women arbitrarily making a comparison between PMS and Bipolar Disorder.   Or “I’ve just been so depressed lately”, to reference a little bit of discontent or sadness.

It’s not cute. It’s not funny. No one with those diagnoses thinks that it’s witty that someone is taking a serious clinical term with so much guilt and stigma that it could bring down a religion, and applying it to their BS, frivolous emotions!

It does everything it can to minimize those conditions.  It puts it in a light that we have some kind of real control over it.  As if it were something that a person can just “snap out of”.  It implies that a person chooses to be disordered.  It also puts a shameful connotation of attention seeking behavior.

Yeah, it’s the life, let me tell you. If I were doing anything for attention, it wouldn’t be this. It would probably be something more hilarious, like plastering myself with an obscenely worded banner and rollerblading through Downtown. Depression isn’t newsworthy, but that sure is.  Or maybe I’d be doing something a little more productive or noteworthy, like finding a cure for cancer.  But no, my depression is just that interesting that I would choose to gain that much needed attention from people I don’t even know or care about.

I have to wonder if the general public has to be so naive that they would actually be jealous over it.  So much emphasis is put on the “just get over it” ideals, as if that were possible. If I could will myself out of this state, don’t you think I would do it already? It would be more logical to think that I want to reclaim my life and be a productive person.  But no, according to others who are ignorant enough of mental illness, I am perfectly content to have disordered behaviors.   Sure, who doesn’t love ignoring their kid because the voices just got too loud? Personally, I love gripping my ears and screaming, “SHUT UP! SHUT UP! SHUT UP!!!!”

And as a result of this blatant ignorance, I am really starting to believe that some are just plain jealous.  Because, they seem to think that those with disorder aren’t being responsible for their emotions and behaviors that result.  I certainly have quarrels with wanting to thrust a sense of selfishness and entitlement out there, because it’s what I have to do to take care of myself and my own in this world.  It’s those same people that shove themselves and their ideals down other people’s throats, only to make them feel bad. Misery loves company, and we’re perfect targets, right?

The point is this.  If a person is out there reading this and getting offended, it’s time to take a step back and think hard.  Is it so fair to be so judgmental?  Isn’t it about time to take a look from another perspective?  Does a person with a congenital disorder choose to be symptomatic?  It would be an entirely different story if I were refusing treatment, but like anyone else, I am keeping my appointments and taking my medication according to doctors orders.  We don’t blame someone for their symptoms when they have a seizure.  Why should this be any different?

Let me assure everyone.  If could have snapped out of this disorder and been a “normal” person, I may have done it, instead of living this ongoing nightmare.

BPD and Me

A post by Angel, concerning Avoidant Personality Disorder, had me thinking again about the possibility of me having Borderline Personality Disorder.  This is a suspicion that has plagued me throughout the course of my treatment within the last year or so.  Instead of going straight to the Borderline Screenings, I went to a personality disorder screening to see the possibilities of what I may be dealing with.

Disorder	Rating
Paranoid Personality Disorder:	High
Schizoid Personality Disorder:	Low
Schizotypal Personality Disorder:	Moderate
Antisocial Personality Disorder:	Low
Borderline Personality Disorder:	Very High
Histrionic Personality Disorder:	High
Narcissistic Personality Disorder:	High
Avoidant Personality Disorder:	High
Dependent Personality Disorder:	High
Obsessive-Compulsive Disorder:	High
— Take the Personality Disorder Test — — Personality Disorder Info —

I really never imagined that I would be symptomatic of multiple disorders in Axis II.  Since BPD still remained the highest, I decided to take a specific screening.

Results of Your
Borderline Personality Test

You scored a total of 43.
Severe Borderline Personality Disorder Likely
You answered this self-report test in a way that’s consistent with people who have been diagnosed with severe Borderline Personality Disorder. This suggests that these concerns may be an issue for you as well, and something that you should seek out further assistance with this issue from a trained mental health professional immediately. Borderline Personality Disorder is characterized by a pattern of unstable and intense relationships, as well as frantic efforts to avoid abandonment — even if it’s not real.

I thought about the entire year and the instability of my own marriage – the most solid thing I can think of.  I had all of these paranoid delusions that my husband was cheating on me, although in the back of my mind, I knew it was not a possibility.  I sabotaged myself at work with the line of thinking that everyone was against me.  I started severing ties with coworkers and hiding in my classroom.  I had always thought that was characteristic of bipolar psychosis, but now, I’m not so sure.

Using the same site that Angel used, I discovered something kind of shocking:

You may be at risk for developing BPD if:

• you have a family member who has BPD
• you felt emotionally unstable or emotionally vulnerable as a child
• people in your household were impulsive when you were a child
• you were emotionally abused as a child

And all of those were true.  My mother does not have a confirmed case of Borderline Personality Disorder, but it seems she is symptomatic.  When she was a very young child, she was put into foster care.  She has absolutely no memory of this, and none of her family members will detail what happened.  My mother married her first husband on a whim, because his draft number came up to go to Vietnam.  She had an extremely turbulent relationships with him, and he mostly left her alone all of the time.  That’s how she met and fell in love with my father.

Their marriage isn’t much better.  In private, she has gone on and on about my father’s faults.  They have had a rocky relationships, where I recall them throwing around the word “divorce” probably far more often than they should have.  She binge drinks and sometimes takes too much medication.  Medication that isn’t even hers to begin with.  She is as impulsive as she can be in her restrictive environment and goes through so much emotional turbulence.  But, she will never leave my father, no matter what.

I was an emotionally unstable child, and I wasn’t the one to immediately notice.  My preschool teacher had mentioned to my mother that I needed to “toughen up”.  That one little phrase was enough to spark years of tough love and general emotional abuse and neglect.  It gave them a free pass to call it “good parenting”.  As a result, I developed this need for achievement as a means of recognition.  I was designed to people please.  Regardless, another comment came from a teacher stating, “Doesn’t take constructive criticism”.  And the idea that criticism was encouraged compounded what I was already going through.

Impulsiveness!  My father used to just go drive off in his car without telling my mother where he was going.  He’d be gone for hours, and she’d be a wreck.  One time, he went through the house waving a gun, terrorizing us with suicidal gestures.  Honestly, I can never get that scene out of my head as hard as I could ever try.  My parents have both run their credit into the dirt over impulsive shopping sprees.

Now, here’s where things get tricky.  Friends and family in the past have suggested that I may be suffering from Borderline Personality Disorder.  An ex used those weaknesses against me.  So the presentation is convoluted because my actions are purposefully deceiving.

frantic efforts to avoid real or perceived abandonment

I self-sabotage in this area.  When I perceive abandonment, I start to shut that person out of my life.  I have this funny idealization that person will perceive my own emotional abandonment and come running back.  It’s what my parents and my ex did to me, and I seemed to have picked it up.

I’ll also become more sexual and start having defensive sex or performing certain sexual acts to peak someone’s interest and entice them into staying with me.

I also have this habit of changing everything about myself to appease my partner.  This is an effort to avoid abandonment.  And it’s one that’s been preyed on before.

pattern of unstable and intense interpersonal relationships, characterized by alternating between idealization and devaluation (“love-hate” relationships)

People that are close to me are also subjected to this regularly.  Honestly, this is a major reason why I don’t let people get too close to me.  At first, I idealize someone and pick out the best of their characteristics.  Then, I start to idealize how the relationship with them will go.  Soon, I will become disillusioned at the first sign of trouble.  And it is at that point that I begin to demonize someone.  Everything about them is bad, and I have ever right to be suspicious at their deceptive behavior.  Except, it wasn’t deceptive.  I perceived them to be something that they weren’t and assigned them to the task of living up to my unrealistic expectations.

extreme, persistently unstable self-image and sense of self

I’d like to paraphrase the way I perceive myself.  I have lived a dozen lives, and each time, with every death, I’ve risen like the phoenix out of the ashes.  In my life, I have been a dozen different people and will be dozens more, each with their own birth, life, and death, only to start once more.

I take one aspect of my life and characterize myself through it.  I’ve been a baker, a mother, a wild child, a caretaker, a housewife, a teacher, a crazy woman, a bipolar woman, etc.  And for some reason, I can’t seem to integrate all of those periods of my life into the same entity.  They are just all separate from one another, as if I were living so many different characters in the same skin.

impulsive behavior in at least two areas (such as spending, sex, substance abuse, reckless driving, binge eating)

It is well known that I have a substance abuse problem with alcohol. But, here are a few facts that are the most difficult things for me to admit. I am guilty of day drinking every now and again. It is never when I’m alone with my child, for the record.  I am also guilty of taking too many benzodiazepines to escape reality from time to time.  Yes, I abuse my medication every now and again.  But, it’s not a dependence kind of thing.  I don’t find that it’s necessary, until I get into a frenzy of hysteria that produces so much distress that it’s unbearable.  The drugs quiet my mind.

And the other one is very difficult to admit as well, and I’m not sure if I can spell it out in detail.  I have a difficult relationship with food, dieting, and exercise.  I am guilty of binge eating.  I am also guilty of purging if I am distressed.  Especially if it’s about my weight.

And lastly, I recently made a confession of my sexual exploits in my youth in Promiscuously Yours, in the series The Friday Confessional.  I had multiple reasons for cheating on my ex, which is something I wouldn’t normally do.  I have a better moral compass than that.  Sometimes, I was so distressed that I just wanted to feel some kind of love.  Sometimes, I was trying to prove to myself that I was something special.  And other times, I did it out of spite.  Any which way you look at it, I did it in highly emotional moments.  And I always regretted it later.

recurrent suicidal behavior, gestures, or threats, or recurring acts of self-mutilation (such as cutting or burning oneself)

My cutting has been well documented in the past.  Unless I make a mindful effort not to self-harm, I will engage in the behavior.  I’ve written posts about the whys and wherefores in Why Self-Injurious Behavior?.  It’s complicated.

unstable mood caused by brief but intense episodes of depression, irritability, or anxiety

The mood episodes aren’t brief, so it leads me to believe that I may have a co-morbid diagnosis instead of a misdiagnosis.  However, I’ve always said this, and people have disagreed with me.  The only two constants for me and my disorder are reactivity and irritability.  I was under the impression that everyone with bipolar disorder is reactive and generally irritable most of the time.  Apparently, I was wrong.

I always have this underlying anxiety.  It’s made worse by social interaction, certain phobias I’ve developed, and worst of all, having to make decisions on my own.  It’s difficult for me to take care of my personal affairs, because I am always waiting on another person’s approval.  I get anxious when I make a decision by myself, because I often second guess myself.  I am constantly seeking reassurance about my decisions and guidance from others.

chronic feelings of emptiness

This one is complicated.  I don’t often feel empty.  I often feel lonely or distant.  Sometimes, I feel invisible, rejected, or ignored.  Most of the time, I actually feel too full.  I’m too full of emotion, noise, and stimuli.  I often have several voices and personas that follow me and make commentary on my life.  It’s too much.  But when medicine gets rid of them, though I am relieved by the lack of conflict, I am lonelier.  It feels like a piece of me is absent.

inappropriate and intense anger, or difficulty controlling anger displayed through temper outbursts, physical fights, and/or sarcasm

I recently wrote a post called, “I Want My Yellow Dress” using the analogy of a little girl in a movie in the most epic temper tantrum ever known to describe my own inner child.  My anger is often out of proportion for a given situation.  I have a bad temper, and I know it.  It’s something I’ve tried to deny for a long time.

In Love the Way You Lie, I described a mutually abusive relationship.  It was the only time in my life I have ever lashed out physically, but the point is that I did.  Whether a person could classify that as self-defense is questionable.  There were times I did it because I wanted to inflict pain on him.  I felt like he needed to know my own pain.

stress-related paranoia that passes fairly quickly and/or severe dissociative symptoms— feeling disconnected from one’s self, as if one is an observer of one’s own actions

I’ve written scores of blog posts and theories about this.  I am prone to paranoia, and I experience it rather frequently.  With my recent medication change, I can say that I usually only go through it once weekly.  Prior to the medication change, it was much more frequent than that.

The dissociative symptoms have been documented in Conscious, Subconscious, and Extraconscious, where I described a theory of multiple personas rather than full blown personalities residing in a place between the conscious and subconscious mind.  It’s complicated to get into, but it’s worth a read honestly.  It would give you a better idea of what I’m talking about in terms of dissociative symptoms.

When I’m doing something out of character, I often feel like I’m not the one who is doing it.  I feel like I’m trapped inside myself, or even completely outside of my own body, as a helpless observer.  When everything is said and done, sometimes I don’t quite remember the details of what happened.

It’s something I’m going to have to talk to my doctor about, because as I get older, it seems to get worse, rather than better.  Sure, I am not self-injuring in the sense that I’m not cutting.  But, I am still engaging in impulsive behaviors, and I can’t tolerate distress or disappointment.  My anger is out of control most of the time.  And that’s not when I feel too doped up to do anything.  Sometimes, I have symptoms regardless of the medication.  When I relapse, it’s usually very bad, and feels like it’s worse than the one prior.  I don’t just have a blip of an episode, but a full blown, complicated one.

Vitamin L : Medication Adventures

Lamictal.  The one drug that I can say that we’ve all been on at one point or another in our adventures with medication.

Pardon me, my aphasia is showing with a little dash of emotional flattening.

I’m having difficultly remembering how to spell things.  You wouldn’t know it, because there is a such thing as spell check just for this purpose (but not solely).  My emotions are at such a level that I don’t actually feel.  It’s closer to a favorite pair of jeans where the dye has just completely washed out.  The jeans still look good, but they are faded and muted.  That’s me.  Faded and muted.

I can’t write intelligently like I did before.  Everything just comes pouring out like word vomit, because I can’t hang on to a thought for longer than a moment.  It’s a miracle that I can put anything coherent together.

The landscape of my technicolor world washed away into an old movie reel.  It’s so surreal.  Once, I was the flowing turquoise waters of the seas, ever changing, always in motion.  Now, I am the cracked earth, immobile and silent.  And ever so slowly, I am drying up and eroding, existing without life rooted in me.  Only the empty air whistles in my mind, catching a faint tune here and there, only to carry it away.

Moments come in flashes.  I am engrossed and deeply engaged for just a few seconds before I am distracted by something nonsensical.

Stop.  Sip of coffee.  What was I doing again?  I reread my last passage, and I am stumped, because it seems futile to even continue.  What is the point I am trying to convey with such vague and poorly worded imagery?

That was my world for the last month, prior to the last couple of weeks.  That is my life today, a translucent figure shrouded by shadows, discontent with such a shackled self.

That was not my life over the past couple of days.  That is how I narrowed down what medicine was doing this to me.  I was starting to run out of Lamictal, my Vitamin L as it’s commonly called in the mental health community (not to be confused with the Vitamin L of Lithium).  I lowered my dose from 300 mg to 200 mg in order to make it through successfully.

Except, there was no success to be had.  I went straight back into the same mixed episode I’ve been a slave to for more than nine months.  It was almost as bad as before, sans the psychosis.  I referred to it as Energetically Sad.  The story of my life.  I went into several crying fits a day, panicked and shouting the same phrase again and again,

“I can’t do this!!!  I can’t do this!!!”

Not again.  Not again.  Not again.

I can’t do this again.

Ultimately, I grabbed my precious medicine and dosed. The distress was immeasurable. I needed relief from that hell, the one I had endured for far too long.

But, I realized I’m not experiencing relief. I’m experiencing escape. My mind goes into a state of partial shutdown, leaving me no real clarity in any aspect. My consciousness is jagged, disjointed, and blurry, at best.

I experience slow motion waves of hollow, but shallow depression. Futility is found at every turn. The shadows seem deeper and more defined, like menacing sillouttes in the distance. I can’t shake them, but they can’t seem to touch me. They nip at my heels, and send ripples of darkness through me, infecting every molecule. And in a few moments, it passes, the poison having been purged.

At first, I thought it was just me. It felt like a new state altogether, like anxiety masked by a tight cloth, rustling, deperately seeking an outlet. It had the face of depression, leaving me dispondent and uninspired. But no true symptoms existed. Not in the desperate, deep dark places I’ve been. I stood in a parellel existence unlike anything I’ve ever known.

And then I thought, “Is this what it’s like to be better?” Dullness and mild discontent.

It’s not.

It’s the medication.

So, that leaves me with two very undesirable states. Perpetual distress or muted depression and anxiety. One zaps my everything, making me too medicated to function. The other disrupts my life with meltdowns, only making me partially functional.

One little pill is what makes the world of difference. My vitamin L.

Conditional Conditions

I was having a fantastic time at Tang Soo Do class last night.  I excelled in techniques that were far above my level.  I was really doing well with jump kicks and then, POP!  I landed on my knee wrong, and here I am.

Mental health disorders with limitations are difficult enough on their own.  I find that I am unable to just go to the mall.  I have to plan, and take a Xanax or two well in advance.  The same is true for many other crowded public places.  Forget concerts, bars, clubs, and occasionally anywhere within Pittsburgh City Limits.  Even the idea of attending an event is overwhelming, fiercely bashing my panic button.  It’s enough of a deterrent on its own.

Phobias often limit places I go and events I attend.  Social anxiety often limits my capacity for meeting new people and maintaining friendships.  And bipolar disorder comes with it’s own special set of challenges.

Bipolar disorder has proven to globally stunt me, from the disorder itself preventing me from having stable relationships and jobs to the medication causing aphasia, making it difficult to express my own thoughts.  “My memory ain’t what it used to be,” although it was never stellar in the first place.  I find it challenging to create new short term memories and even sometimes long term memory is kind of foggy.

Depression and mania, in their own respects, both cripple my ability to function.  In depression, I have a tendency to isolate myself, causing my relationships to go sour quickly.  I find that the state of depression and the behaviors associated with it are generally a mystery to others.  Since it is so misunderstood, people may start attributing it to life events incorrectly.  And when the depression doesn’t subside, others become short with me, occasionally to the point of ignoring me.  No one likes a wet blanket, so to speak.

Depression also causes me to lose interest in activities I used to find enjoyable.  Worse, I become disinterested in work and start to have issues with the processing speed of my cognition.  I cannot focus on a particular task, and most situations become completely overwhelming.  In short, I feel like I am unable to handle my life any longer.

Mania is a horse of a different color.  In certain types of mania, I become overly social to the point of being overbearing, blunt, attention-seeking, and needy.  It puts an extreme burden on friends and family.  In euphoric mania, I will demand my impulses be satisfied without a thought to how it will affect anyone else.  Contrastingly, in dysphoric mania, I will become enraged at the slightest thing, real or imagined.  I have been known to become aggressive.

I have a tendency to become overly ambitious.  That would entail me taking on too many tasks at once, with the intent to finish them all, but with zero follow through.  This is especially detrimental to my work, seeing as how I find it next to impossible to sit still, or remain on one task for any significant duration of time.  I will demand immediate satisfaction, and have an inclination to become aggressive with co-workers.

With psychosis involved, there is a whole new ball game.  In psychosis, my grasp on reality starts to loosen.  I will insist that conversations took place that never actually did.  I will invent ulterior motives from suspicion generated by delusion.  Or, contrastingly, I will assert myself incorrectly by insisting I am infallible and all-knowing.  In the worst instances, I have had delusions of being a time traveler, not living in this reality but in an overlapping parallel reality.  Psychosis makes typical functioning next to impossible.

Mixed states provide a variety of issues drawing from both mania and depression, respectively, but also brings other unique symptoms and behaviors to the surface.  In mixed states, I often suffer from dissociation and splitting.  It’s as if my mind cannot handle the overload of external stimuli that provokes and emotional response, therefore I dissociate.  Occasionally, I have been prone to partial dissociative amnesia, where events that took place become only vague in my memory.  I have been known to have multiple personas, and in the most distressful of moments, my dominant persona becomes pushed into a partially conscious state as a disgruntled, passive observer to the actions and behaviors of the alternate persona.

As if these conditions are not serious enough on their own, they can be aggravated by a physical illness or injury.  I am experiencing a lot of emotional turbulence over this knee injury.  First, I am panicked that I did not receive professional medical attention.  I am wearing a brace from my last visit to the ER for a similar condition, but I obsessively worry that I may be using it incorrectly.  I am putting a small amount of weight on it, and it occasionally hurts pretty badly.  I worry that I am doing more harm than good.

Secondly, I am embarrassed over the injury that happened in the middle of class.  In short, I landed wrong during the jump kick and felt my knee give out.  I feel like a complete rookie, although I am only a white belt at this time.  As I am very sure that many people have gotten injured before, I still feel like it is maybe too big of a deal.

Next, I feel guilty that my husband had to spend his entire night driving back to 511, our old home, to retrieve my knee brace.  Why didn’t I have the presence of mind to bring that knee brace when I am well aware that I have life long knee problems?  It seemed like an entire night wasted, all over a silly injury I probably could have prevented, had I been more careful.

And lastly, I feel helpless.  I am responsible for supervising my child while my husband is off at work for nine or ten hours a day.  I am terrified that I am not going to be adequate to care for him properly.  I am unable to move around, therefore my function is limited.  Mostly, I will likely be confined to a sitting position for most of the day.  I am at the mercy of others.

All it takes it one spark.

The Friday Confessional – Carry on My Wayward Son

My son, Beast.  He’s . . . spirited.  I’d love to leave it at that, but this is The Friday Confessional.

I love my boy to pieces.  But, I knew he was going to be a handful long before he was even born into this world.  I had a rather difficult pregnancy.  And he hilariously went silent and still whenever anyone tried to “feel the baby kicking”.  While he was on the inside place, he managed to kick himself to a position where he was constantly ramming his head into my cervix.  He accidentally got his foot stuck in between one of my ribs and struggled wildly to get free.  Once he was free, he did it again for what I can only consider as fun.  People don’t seem to think that fetuses can have emotions or fun.  I know differently from my son.

My son was born with this particular temperament.  He was a lazy and impatient nurser, who refused to nurse and preferred the bottle.  That’s my son.  Obstinate beyond all logic.  When that boy puts his foot down on something, that is the word.  And we clash at every point.

It’s not entirely his fault.  In June 2011, he was diagnosed with Pervasive Development Disorder – Not Otherwise Specified.  In short, that puts him on the higher functioning end of the Autism Spectrum.  I wrote:

I’ve always said that nothing in life prepares you to be a parent like being a parent.  Truly.  In my youth, I’ve helped to raise so many people’s babies and toddlers, but it was nothing like becoming a mother myself.  Sure, I had the care basics down, but that’s not even scratching the surface.

So therefore, nothing can prepare you for a professional telling you there is something wrong with your child.  Not even if you suspect it yourself.

That was over a year ago.

In truth, I’m in denial.

The battle wounds are still fresh from my youth.In those days, I found I was the most comfortable in the tiniest of places, completely unlike today, where confined spaces are cause for the air being vacuumed from my lungs, and my brain to catch fire.  Those were only places I recall being safe; wedged between the sink and the wall, tucked in the back of a closet, curled up in a cabinet under the sink.  Those places were quiet and dark.  The only places I could find serenity and safety.

I remember instances where my hulking brother would hunt me down. Those were my go-to places.  As long as I took refuge when the violent fits started, I had a chance of being safe.  He may have tried hard to swipe at me, but I had the advantage.  I was a small girl who could ball up and disappear from this world.  In those places, I could be safe from brutal, unprovoked attacks.

Out of sight is out of mind.

And out of mind it out of sight.

The injustice perpetrated on me went far beyond that.  That was considered excusable behavior due to my brother’s condition.  I was told things like, “He can’t help himself, but you can.”  I never did anything to purposefully antagonize him.  I feared him.  And when my parents would practically reward his behavior by conceding to his every desire, I hated him.  Even to this day, I still hate him for all of the gifts and attention he siphoned off from me.  I was a model child with straight A’s and glowing reviews from teachers.  He was a terrorizing monster.

When my son was diagnosed in the same spectrum, I was crushed.  Some parents can say they were blindsided by the diagnosis, but I certainly was not.  I saw the signs long before a doctor had to confirm them.  I was just hoping that there was some alternative explanation.  I don’t love him any less.  But, in truth, I see him differently.  Maybe differently than a parent should.

I remember being pregnant.  And I remember having serious talks with the sky boss.  I pleaded, “Please, God.  Please don’t let my son have autism.  I can’t handle that.  I wanted to deny it.  I would tell people how high functioning he is, and how his developmental deficits were not that of a child with autism or aspergers.  When he was denied entry into a regular preschool because they aren’t equipped to handle him, I was crushed again.  My hopes that he was developmentally appropriated were dashed.

The truth is, my son is disabled.  And he needs my help, now.

And here’s the worst part of my confession.  I have a certain amount of resentment for his condition.  I find it difficult to interact with him appropriately.  When he acts out aggressively, I meet him with a certain amount of aggression of my own.  I refuse to be terrorized by my own son, a huge, strong little four year old.  It makes me feel small and scared every day of my life.

There is rare gratification.  Most parents have children that will play with them.  My son tries, but he can’t seem to make it happen.  I watch him struggle with basic things.  I feel like a failure of a parent, because he’s not potty trained and mostly refuses to wear clothing.  I resent him when I am cleaning up bodily fluids he carelessly threw everywhere, like a little animal.  And I hate myself when I liken him to a puppy in my mind.

But, there a moments where he looks me dead in the eye and says things like, “Look Mommy, out the window.  Look, the trees!”  Or, the day that we were outside and he scraped his leg.  He straddled me and we held each other, rocking for awhile.  Then, he grabbed me by my shoulders, held me away to look at me and sang, “I yuv you.  You yuv me!”

There are those rare moments of hope that I hold to.  Even in my darkest hours.

Capricorn

My MO.

Little Shades of Grey – Domestic Sexual Assault

Trigger Warning:  This post may contain triggers that would be hazardous for readers who have a history with sexual assault and crimes of that nature.  It is strongly advised that children under the age of 13 and those that may suffer adverse affects from this post take care and use caution while reading,.  Reader discretion is advised.

In the previous post, Little Shades of Grey – Sexual Assault by a Lover, there was a representation of statistics and a personal account concerning sexual assault and rape.  Unfortunately, that incident was not a sole occurrence.  In fact, it was just the first.

Some women are still stuck in the old mentality that there are just some things you have to do to please and keep your man.  I grew up with the idea that sometimes, I would have to perform sexual acts I did not want to participate in, or I’d have to engage in intercourse when the mood and / or time was not right for me.  It was the nature of being a woman.

Dozens of grey rapes, my mind came to put a term to it, so I wouldn’t actually have to relive it. It was the attempt to free myself from the haunting memories. But, it wasn’t enough. Dozens of times I said no. Many times he reminded me that if he wasn’t “gettin’ it from you, then I’ll get it somewhere else”. Bullied into it, by a man who preyed on my deepest vulnerabilities.

How many times had I thought we had a fantastic night only to wake up to a surly, dismissive, apathetic day?

I started to realize that there were no fantastic nights. There was cheap booze, little white lies, and completely carnal fucking.

The first instance with Avi was not even a full year after the incident with Beck.  It didn’t register, because it was just so subtle.  He lovingly and eagerly asked.  I was too ashamed to tell him the truth about what happened.  I was anxious at the idea of disappointing him, and I went along with it.  It was just that one time, right?  I could satisfy him and then say no.

Then, there is the mentality that no doesn’t really mean no.  For many women, myself included, there is a disconnect between mind and body.  While my mind may be shouting, “NO!”, my body may not be complying.  It’s confusing for a woman, and encouraging for a man.  Men, but societal rules, are accustomed to the chase.  Often times, men get the wrong signals.  And for a predator, that is a perfect excuse for inexcusable, despicable behavior.

To some men, no doesn’t mean no.  No means, coerce me.  No means, harass me.  And that’s exactly what I experienced.  There was no changing my mind, or else I was a tease of a girlfriend who deprived my boyfriend of sexual gratification for my own kicks.  There was no saying no, or my will would be broken down in one way or another.  Finally, not complying with his wishes was grounds for threats and dismissal.

“If you don’t do it by choice, then I’ll just have to take it by force.  But you’d like that, wouldn’t you?”  I shiver and tremble at that phrase.  In my mind, there was nothing worse than losing control of my situation.  What I didn’t realize was that sex and sexual acts were no longer my own choice.  I was, for all intensive purposes, a victim of continual sexual assault and grey rape.

Sex is often a mechanism for control.  And seeing as how I was also both a victim and abuser in other ways, it was the perfect arena for him to gain back control.  Though I would disagree, and I would put up a fight, he would always eventually win.  Nothing scared me more than another full on assault.  Maybe I thought I had the control by consenting.  It’s tricky to know.  I described a bit of it in Decent into Hell.

Just say yes, you little masochist.  

Addictions leave you little choice.

Help me tighten these chains.  Is that my voice?  My mind screamed to be released, for me to take the free ticket to ride and go.  But my heart without it’s limbs could not be freed from it’s vice.

The pleasant memories melted into the form of nightmares.  There was a double edged sword, turning the pleasurable jabs into horrific stabs.  My monologue’s narrator was raspy and exhausted.  Playful smiles turned to sinister grins just as loving chuckles morphed into maniacal laughter.  The blaze pushed forward, engulfing everything in sight.  It seared my flesh, leaving nothing but brittle bone.

In a domestic relationship, it becomes harder to define rape. It becomes even harder to convince others that the sexual contact was not consensual. Worse, is the probability that one will have to face their assailant in the wreckage of the aftermath of reporting.  And that’s possibly why so many sexual assaults and rapes go unreported in those situations.

There are deviant sexual acts I was forced to participate in that I am still ashamed of.  I recall my first threesome.  I consented to it under the pretense of defensive sex.

For those of you that are unfamiliar with defensive sex, it is a sexual response to an emotional manipulation playing on the insecurities of sexual performance and satisfaction.  It is an attempt to avoid abandonment and ease fears for some.  I recognize the manipulation in my own mind now.  And I realize that I had engaged in this behavior and played into his own hand.

The focus of the threesome shifted to a twosome, only involving me as a third party observer.  And I recall watching, thinking I had been tricked into watching my ex sexually gratify himself as a show of force.  As if he was proving to me that other women wanted him, and I was apt to lose him at any time.  I was ashamed at the manipulation.  Later, when my friend and I lost touch over it, I realized it was also an isolation mechanism, enabling all forms of abuse by removing me from third outsiders.

I could have never seen it coming.  Like other forms of abuse, it creeps up and becomes the new “norm”.  Also, it has devastating effects on emotional, sexual, and romantic dynamics in future relationships, again, like other forms of abuse.  This is just as real and horrifying as any other form of abuse, though it is far less recognized.  However, it should be recognized for what it is, and women should be educated and informed about the possibility of this type of hidden abuse.

With or Without You : 30 Days of Truth

Day 15 : Something or someone you couldn’t live without, because you’ve tried living without it.

Most people would prefer to choose a certain special someone or an object to contain all of their affections.  Though my relationship with this is troubled, I have found it to be impossible to live without it.  Even if it’s so hard to live with it.

Medication.

I have made the attempt several times in my life to live without psychiatric medication.  My first was a psychiatric evaluation when I was thirteen, and I refused treatment.  What thirteen year old has the intense desire for repeated therapy visits and pesky medicine?  As a direct result, my symptoms progressed, and I wound up my own cutting board.  When it became concerning, no one was willing to take me back for actual treatment.  Instead, I unnecessarily suffered until I humiliatingly revealed myself and my wounds to an outsider.

The next time was in my late teens.  After being medicated for nearly five years with no result, I was ready to give up on $60 co-pays for a medication that just gave me heroin-like withdrawal symptoms when I forgot to take it.  (That was also the first time I became strongly inclined to start carrying medication on me in clever, cute containers).  I spent a gratuitous amount of time on weekends in a different county, an hour away from my home.  The bus services were shoddy at best, and if I forgot to take my medicine on Friday, then by Sunday morning, I was violently shaking and vomiting in front of my relatively new boyfriend.

This new boyfriend, Avi, convinced me that there was absolutely nothing wrong with me.  The medication was doing more damage to me than good.  It was a waste of time and money.  Psychiatry was a joke and a con for cash.  It would be in my best interest to get off of the medication.

The funniest thing about that was the fact that I became irreconcilably depressed when I weaned myself from the Lexapro, an SSRI.  I required way more than my typical six hours of sleep.  I could no longer party until dawn.  And mostly, my only desire was to scream and cry my eyes out.  After you’ve been hypomanic for so many years, having a crash like that was epic.  Coincidentally, it coincided with the very first cliff fall in our torturous relationship.

And resulting in that choice, I developed functional alcoholism prior to the legal drinking age in the United States.  It took several abusers, victimization, abject poverty, and becoming an abuser to take me down into the depths of a bottle.

I found that I had even given up on self-medication.  When Xan and I got together, it became obvious that he suspected I suffered from addiction.  Though our relationship was certainly not new, our courtship was brand new.  In order to not put him off, and make a show of my own self-control, I slowly ditched the bottle.  I was so addicted that I found I had to be intoxicated to make love to him.  At least a little.

A few years later, I started treatment.  I had managed to remain sober, however, I had completely lost control of myself.  Several months into treatment, I ran into every medicated person’s greatest fear.  My medical coverage was eliminated.  Every pharmacy reported the same thing; Lamictal costs a fortune, and if I can’t afford COBRA, then I sure as hell cannot pay for it from pocket.  I found myself soliciting every pharmacy within a 10 mile radius for assistance.  Finally, one came through for me.  But, not before I suffered cruel withdrawal symptoms.

A similar withdrawal happened over a holiday.  I was unable to see my Pdoc before Christmas, and he had taken vacation through the New Year.  The office had a policy not to call in medications, so I had to make an appointment to go in.  Catch 22.  For four days, I laid there writhing in bed.  Xan took charge, and I had a refill that same day.

The very last time was one of my own poor choices.  That is exactly what mania does – it gets your hooks into you and tells you dirty little lies.  I had decided to attempt to wean myself from medication slowly so that I could prepare to attempt pregnancy.  I did so alone.  Instead of consulting a doctor, I went ahead.  And instead of getting off of medications, I had psychotic breaks the likes of which I have never been remotely acquainted with.  The result was more medication and a lesser likelihood of having a second child.

I have been without by force, by accident, by coercion, and of my own volition.  Like it or not, I cannot live without medication.

The Seeds of Doubt

Amnesiac.

That might be a painfully accurate depiction of a large part of me. My memories prior to eleven are largely fragmented, save for a few vague impressions, recurring themes, and a traumatic experience that has recently resurfaced to rear it’s ugly head at me. Regardless of how often I attempted recalls, those calls went unanswered. A flicker, like a spark, would come alive, but leave existence as quickly as it came.

I often find myself in a unfocused world of disjointed memories and alternate realities. The vast fields of fog are sewn with seeds of doubt, spouting fears and obsessions. In those fields and shadows, monsters have plentiful cover to prowl for their prey – me.

They often say that when a lie is repeated so many times, it starts to embed itself as a portion of factual memory. Basically, if a person believes in something strongly enough, it becomes real. It becomes enough to rewrite someone’s entire history. The lines between reality and fantasy start to blur in a place where fiction and fact can coexist, even potentially peacefully.

Unfortunately, I have not once before been a person who can successfully smudge the details of my own personal past. Not to myself, anyway. I can report being guilty of deception by omission. But, something distressful stirs and blinks with any instance I even remotely consider telling a blatant lie.

This is not say I am immune to deception and coercion into accepting an outright lie. My psyche is malleable in the way where I am susceptible to manipulation. Why? Because it’s been the very basis of which I have been raised.  My father once told me, “Believe none of what you hear, and only half of what you see.”  Then, was it his intent to distort my world in such a way that I will one day have difficulty trusting myself?

There are so many clinical words for this.  Dissociation.  Depersonalization.  Derealization.  Psychosis.  Delusion.  Hallucination.  Dissociative Fugue.  Splitting.  Repression.  Coping.  So many clinical terms that overlap in their definitions, and yet, not one quite captures the true essence of being within it’s grip.

For me, my repression has a proximity sensor.  Clinically, it’s called Dissociative Amnesia or Dissociative Fugue.  In the past, I have always called it throwing a block or throwing up a wall.  I am figuratively walking along in my own mind, through wild, overgrown fields and forests of my own memories to suddenly smash into a concrete wall.  Suddenly, the whole landscape shifts, and I am boxed in this nondescript, blank white room.  White walls, white floors, no windows.  It is me and a dining room chair.  This is my mental waiting room, where I am being isolated until the memory of the memory passes.

I call it, “The Eraser”.  When it’s all said and done, I come back to consciousness in my own familiar surroundings, in my own waking life.  But, is it?

This is the direct result of the seeds of doubt being sewn into a person so carelessly in the impressionable youthful brain.  The concept of an active consciousness is disturbed, and the development is stunted and contorted.  It must be so easy to manipulate someone with such a frail sense of reality, a blank canvas of self, and stunted emotional maturity.  And that’s why abusers do it.

I slip in and out of streams of consciousness, alternate, yet simultaneous realities, and find skips and pauses that disarrange an incomplete chronology of life.  I start to get the belief that I am, in fact, a time traveler, as my external self as my own ship, however I have no use of my own controls.  Somehow, somewhere along the way, I have been damaged.  It mimics human ailments.

But I know none of that is true.  I am just as human as the next person, with cognitive dysfunctions resulting from mental illness and latent trauma.

Or faulty wiring.

I doubt everything.  My experiences often seem surreal.  My memories, unless attached to a particularly powerful moment, are vague.  My short term memory is shot, so it becomes unreliable.  I doubt everything I feel, all of the conclusions that I come to, and some of what is right in front of my face.  I doubt right down to self.  Is this me?  Am I me?  Am I here?
How did I get to such a place where I have to question everything?